We are currently developing a wearable biofeedback system for use with lower-limb prostheses. Once developed the biofeedback system could serve as a training tool for lower-limb amputees to improve gait and balance.
A randomized placebo-controlled trial of arbaclofen vs. placebo in the treatment of children and adolescents with ASD.
We are currently investigating a study drug called arboclofen to improve social functioning in children and teens with Autism.
Accuracy of community pediatricians’ diagnosis of developmental concerns compared to a multi- disciplinary team assessment
We are studying how we identify and diagnose children with developmental concerns in Ontario.
Adapting Anxiety Intervention for Youth with Autism for Rapid Response to COVID-19: A Research Project to Provide and Evaluate Virtual Mental Health Care
Our team is trying to identify the clinical profiles of children diagnosed with Avoidant/Restrictive Food Intake Disorder and Autism Spectrum Disorder.
Assessing the frequency and experience of bullying or peer victimization in children with Muscular Dystrophy and Congenital Myopathies
One in 3 kids in Canada get bullied for reasons like how they look or talk. Kids get bullied in person and online. We think bullying might happen more to kids with Muscular Dystrophy/Congenital Myopathy, but no one has asked them about it yet. We want to find out how often kids with Muscular Dystrophy/ Congenital Myopathy get bullied and how it affects their life. If we know when, where and how kids with Muscular Dystrophy/Congenital Myopathy get bullied, we can help kids feel better if they get bullied, or even stop it. Sharing your experiences with us will help.
This study looks at two different versions of Bootle Band (a touchscreen version, and a version where you can play real-life musical instruments) to understand which is more enjoyable for children. In both versions, children manipulate virtual instruments to help the Bootles reach stardom. Bootle Band includes multiplayer support if your child wishes to play with their siblings or friends. We want to know if designing an audio interface which can detect real-life instruments would be more enjoyable than a traditional touchscreen.
Childhood Cerebral Palsy Integrated Neuroscience Discovery Network “CP-NET” – Clinical Database Platforms
The Childhood Cerebral Palsy (CP) Integrated Neuroscience Discovery Network “CP-NET” is designed to bring together children with CP, their families, and clinical and basic scientists to foster neuroscience discoveries through integrated translation. Understanding the underlying neuroscience mechanisms, pathology, physiology, and genomics of CP is critical to developing improved treatments. In particular there is a critical need to link translationally-oriented neuroscience research with cutting-edge neurorehabilitation approaches for CP.
We want to learn from youth with disabilities about their views on patient engagement in research – what it means to them and how we can support this.
Enhancing Care for Young People with Muscular Dystrophy: Addressing the Human Dimensions of Progressive Illness Experience
This project aims to explore and enhance compassionate care for young people with muscular dystrophy (MD) and their families.
We want to understand your experiences looking for work or being employed. Specifically, we want to understand your experiences with coping in a competitive work environment. In addition, we want to learn about disability disclosure and how youth with disabilities ask for accommodations in the workplace.
Health and wellness are important aspects of the care provided to children and youth with CP at Holland Bloorview. Yet despite its importance incorporating a wellness approach into clinical practice remains a challenge. Barriers such as lack of resources and time, uncertainty regarding how to prioritize wellness aims, and how to address the diverse and individual needs of children and families, can interfere with wellness promotion. Our study will partner with clinicians, children and families to collaboratively identify and attend to the wellness needs and aspirations of children with CP and families , toward the delivery of holistic, family and child-centred care. In this study “wellness” refers to the emotional, existential, social, and moral dimensions of illness experiences and care that co-exist with the physical/biological and technical dimensions. Our goal in the study is to partner with practitioners, young people and families to explore what wellness means to them, how wellness does/can align with clinical care, and to identify approaches, techniques and tools for collaboratively enhancing wellness.
This study is testing how easy it is to set up and use a new wireless vocal cord vibration switch and how helpful the training materials are. The switch has a sensor in a neckband that detects when a user makes a ‘hum’ sound.
Experiences of working, volunteering and unemployment during Covid-19 pandemic among youth and young adults
We want youth’s input on their experiences of working, volunteering and unemployment during the Covid-19 pandemic.
The research team at Holland Bloorview developed an e-Learning module called Teach ABI. This module is created for educators to support students with Acquired Brain Injury (ABI). The objective is to raise Ontario educators’ awareness and knowledge of ABI and promote positive outcomes for children with ABI in the education system.
We have learnt that children with disabilities and weight management and wellness needs, along with their families often experience challenges and difficulties accessing health and wellness support and/or weight programs.
Our genomics study will identify and characterize genes that confer risk to autism spectrum and related neurodevelopmental disorders.
Helping Hand: The effectiveness of a modified Constraint-Induced Movement Therapy program for children with acquired brain injury
Exploring the use of using constraint induced movement therapy to improve upper extremity functioning and occupational performance in children following acquired brain injury.
Left in the waiting room: A pilot study of a digital intervention pilot for siblings of children with special needs
The research team at Holland Bloorview Kids Rehabilitation Hospital would like to invite you to participate in an intervention called i-SibworkS, an e-health and peer support group intervention led by clinicians to serve the mental health needs of siblings of children and youth with special needs.
Left in the waiting room: A pilot study of a digital intervention for siblings of children with disabilities
The research team at Holland Bloorview Kids Rehabilitation Hospital would like to invite you to participate in an intervention called i-SibworkS, an online peer support group intervention led by clinicians to serve the mental health needs of siblings of children and youth with disabilities.
Measuring brain synchrony between children (both with or without an autism spectrum disorder diagnosis) and their parents while drawing pictures together.
Has your child been diagnosed with cerebral palsy? Your child may be eligible to participate in a randomized controlled clinical trial that will investigate the effectiveness of a medication called metformin, and whether it helps to improve your child’s movement and thinking skills.
Move and Connect: Developing an Instructional Resource for a Group-based Active Rehabilitation Youth Program
The research team at Holland Bloorview Kids Rehabilitation Hospital would like your knowledge and insight to help design an instructional resource that facilitates the delivery of an active rehabilitation group-based program named Move&Connect.
We hope to develop a new way to access communication for children who have difficulty communicating or are unable to communicate using speech alone. We are developing a device that aims to distinguish between brain activation and rest. You will be able to track your brain activity in real time with a moving toy car using two different styles of tasks. First by thinking of the things you like and secondly, without thinking, which can be achieved with practice.
Navigating the Medical and Social Merry-Go-Round: Understanding the Caregiving Experiences of Parents from Racialized Backgrounds that Care for Children Living with Autism Spectrum Disorder (ASD)
The HEART Lab at Holland Bloorview is doing a study to understand the caregiving experiences of parents who identify as coming from a racialized background and care for a child with autism. In the study, you will be asked to discuss your caregiving e xperiences in which we will explore topics such as cultural stigma. In this study you will also participate in an art activity in which you can express your experiences.
Parent Perspectives on How to Communicate About Mental Health with Children and Youth with Physical Disabilities
The research team wants to know what is important to the parents of young people with physical disabilities in regards to mental health and wellness. We will use this information to inform clinical guidelines for more effective and targeted early identification and addressing of mental health needs.
Partners for enhancing healthy and productive work for young men and women with disabilities: Simulation and toolkit evaluation phase [Clinician]
We want input from clinicians, service providers and trainees as we evaluate evidence-based toolkits that aims to help clinicians’ gender-sensitive approaches within the context of employment.
Partners for enhancing healthy and productive work for young men and women with disabilities: Simulation and toolkit evaluation phase [Employer]
We want input from employers and human resource personnel as we evaluate evidence-based toolkits on disability disclosure discussions and inclusive workplace environments.
Partners for enhancing healthy and productive work for young men and women with disabilities: Simulation and toolkit evaluation phase [Youth]
We want youth input in evaluating an evidence-based toolkit that focuses on workplace disability disclosure and accommodations.
We are collecting information to help in our understanding of how genes, brain and bodies are different if a person has a neurodevelopmental disorder or is typically developing.
To understand how genes affect the brain, body, and behavior and translate this understanding into new ways to help individuals with autism and associated neurodevelopmental disorders.
R2Play: Testing a stimulated sports environment to support return-toplay decision-making following youth concussion
The research team at Holland Bloorview Kids Rehabilitation Hospital is developing a system to help youth with concussion return to their sport life (return-to-play). We would like you to test the system, R2Play and get your feedback so we can understand the value and challenges associated with this system.
Research to provide educators the skills and resources to work with children with acquired brain injury (ABI)
A research team at Holland Bloorview has developed an e-Learning module called Teach-ABI. The objective of this module is to raise Ontario educators’ awareness and knowledge of acquired brain injury and promote positive outcomes for children with ABI in the education system.
Our team wants to know about the physical, mental, and sexual wellbeing of youth with physical disabilities. We hope to discuss how youth with physical disabilities think and feel about their sexuality. These experiences are important and may help improve programs about sexuality for youth with disabilities.
Safe transportation of children with physical disabilities is essential for their participation in daily activities. This study explores how parents of children with physical disabilities in Ontario are currently transporting their children. The goal is to support advocacy efforts to ensure children with disabilities have access to services and equipment that will allow them to be transported safely.
This study looks at two different “apps” to help young people practice fine motor skills at home – Dexteria and Spell Tracer. In both apps, kids trace patterns on a tablet. Spell Tracer includes many features similar to video games. We want to know if designing therapy games to be more like entertainment video games impacts kids’ experience of the activity.
Cerebral palsy (CP) is the most frequent cause of physical disability in children in Canada, affecting 2-2.5/1000 children every year. This project aims to establish a Canadian Cerebral Palsy Registry, to provide an epidemiologic profile of CP in Canada reflecting the full heterogeneity of the disorder and provide a platform for population-based research on CP. It will serve to estimate the incidence, prevalence and distribution of cerebral palsy in Canada, while facilitating research in this field.
We want to explore what health and wellness means to young people with physical disabilities and what health activities are important in their everyday lives. We want to hear about what sort of things you do or want to do to be healthy and feel good.
The researchers at the Autism Research Centre, Holland Bloorview Kids Rehab are doing a study to understand how our body signals, like our heart beats, change when we feel frustrated.
We want parents/guardians (any adult family member in a caregiving role) of Bloorview clients ages 12 to 25 to complete a 5-minute survey two times to tell us what they think of their child’s transition readiness.
Our team would like to learn about transportation experiences of youth with and without disabilities. We would particularly like to know what it is like to navigate public transportation independently and / or the process of obtaining a driver's license.
Understanding pain trajectories and their association with well-being in children and youth with cerebral palsy
We are asking children and youth with cerebral palsy to help us learn about if they hurt and if it affects them. This study will help us better understand about if and how much pain is felt by children and youth with cerebral palsy.
Usability Study - Teaching Educators about Acquired Brain Injury (Teach-ABI): A Healthier Classroom for All
The NOvEL Lab is conducting usability testing of an online e-Learning module for Ontario educators about acquired brain injury (Teach-ABI). The objective of the Teach-ABI module is to raise Ontario educators’ awareness and knowledge of ABI and promote positive outcomes for children with ABI in the education system.
To evaluate the reliability and construct validity of the FNQ-PR.
What are the Mental Health and Wellness Needs of Young Adults with Spina Bifida? A Stakeholder Engagement Workshop
Researchers from the Bloorview Research Institute would like to invite you to take part in a study about mental health and wellness in young adults with spina bifida. Parents of children or youth with spina bifida are invited to participate in a focus group to discuss findings from a review of the research literature about mental health and wellness in young adults with spina bifida.
We will study the needs, challenges, and approaches used to position preschoolers with disabilities for bathing activities at home. Focus groups with groups of parents and therapists will give us a practical way to evaluate and develop better bath products for young children with seating needs.
Workplace disability disclosure decisions among youth and young adults with Autism Spectrum Disorder
In this study, we are looking to explore the needs of youth with autism related to making disclosure decisions about their autism diagnosis at work. We want to know what youth need to help make disclosure decisions in the workplace.
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