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A collection of blogs, websites and other links and resources for parents of children with disabilities and chronic health conditions and the professionals who work with them.

Index

Autism & Aspergers  •  Complex Special Needs  •  Cerebral Palsy  •   Developmental Disability  •  Disability Activism & Advocacy  •  Disability & Race  •  Down Syndrome  •  Education  •  General Special Needs  •  Intellectual Disabilities  •  Limb Difference  •  Medical Journals, Doctors & Medical Information  •  Mitochondrial Disease  •  Neurological Disorders  •  Physical Disability  •  Rare Disease  •  Seizures & Epilepsy  •  Spinal Muscular Atrophy  •  Accessible Travel, Fashion & Lifestyle

Complex Special Needs

Jennifer Johannesen (Canada)
Insights from a mom whose son had complex medical needs and disabilities and died at age 12; author of No Ordinary Boy

Complex Child (U.S.)

Not the Former Things (U.S.)

Cerebral Palsy

The American Academy for Cerebral Palsy and Developmental Medicine (U.S.)

The Caregivers’ Living Room (Canada)

Chasing Rainbows (U.S.)

CP-Net (Canada)

CP Teens Blog (U.K.)

Disabled Families (Canada)

The Early Birdies (U.S.)br />Cerebral palsy, preemie, tube-fed with real food

Free as Trees (Canada)
Cerebral palsy, augmentative communication, service dog

I Have Cerebral Palsy — So What, I'm Still Awesome! (U.S.)
14-year-old with CP

Love That Max (U.S.)

Ontario Federation for Cerebral Palsy (Canada)

The Squeaky Wheelchair

That Crazy Crippled Chick (U.S.)

View from a Walking Frame (U.K.)

World Cerebral Palsy Day (Worldwide; Australia-based)

Zachary Fenell (U.S.)

Developmental Disability

Disability Scoop (U.S.)

Disability Activism & Advocacy

ARCH Disability Law Centre (Canada)
A specialty legal clinic based in Toronto. 

Disability Rights Education & Defense Fund (U.S.) 

Disability United (U.K.)

How Did We Get Into This Mess? (U.S.)
Disability rights journalist David M. Perry

SSAH /Passport Coalition (Ontario)

Disability & Race

Autistic Hoya (U.S.)  

Ramp Your Voice with Vilissa (U.S.)
Empowering black disabled women

General Special Needs

Abilities (Canada)

Aidis Trust Blog (U.K.) 

Ability Online (Canada)

The Accessible Stall (U.S.)
Podcast

All Together Now Blog (U.K.)

Back Pain Blog UK (U.K.)

Carers Trust Blog (U.K)

Child Development Institute (Canada)

Children’s Treatment Network (Canada)

The Conversation Library (Canada)
A fascinating series of videos with parents of children with disabilities and people with disabilities. By Jennifer Johannesen.

Disability Studies, Temple U. (U.S.) 

Disability Today Network (Canada)

DisabledGo (U.K.)

Diverse City Press (Canada)
Publishers of educational materials for people with disabilities and their care providers.

Easter Seals (Canada)

Ethos Disability Blog (U.K.)

Exceptional Parent (U.S.)

Family Alliance (Canada)

Friendship Circle (U.S.)

Inclusion Press (Canada)

March of Dimes Canada (Canada)

Media Dis&Dat (U.S.)
News stories on disability

Mumsnet (U.K.)
Large U.K. parenting blog with special-needs section

The Mighty

New York Times (U.S.)
Opinion series on disability

Not Standing Still’s Disease (U.S.)

Ouch: Disability Talk (U.K)
BBC podcast

Partners for Planning (Canada)

Social Emotional Enhancement and Development (Canada)
“The Social Emotional Enhancement and Development website aims to provide evidence based resources to promote social emotional competencies of children with special needs. The content of the website is managed by the Psycho-social team at BC Centre for Ability.”

Special Needs Jungle (U.K)

Support for Special Needs (U.S.)

Through the Looking Glass (U.S.)

Today’s Kids in Motion (Canada)

Today’s Parent (Canada)

The World of Special Olympics (U.S.) 

When Tania Talks (U.K.) Children's hospital blogsArnold Palmer Hospital for Children Illuminate blog

Children's Minnesota Mighty blog

Cincinnati Children's Blog

Seattle Children's Teenology 101

Thriving, Boston Children's Hospital

Intellectual Disabilities

Community Living Ontario (Canada)

ConnectABILITY (Canada)

Faith and Light (France)
Christian communities that foster friendship with people with intellectual disabilities, in 80 countries

L’Arche Canada (Canada)

L’Arche International

Limb Difference

Born Just Right (U.S.)

Medical Journals, Doctors & Medical Information

About Kids Health (Canada)

American Academy of Physical Medicine and Rehabilitation (U.S.)

American Congress of Rehabilitation Medicine (U.S.)

Brainstreams (Canada)
A project of the B.C. Brain Injury Association

Canadian Association of Physical Medicine & Rehabilitation (Canada)

Community Brain Injury Program for Children & Youth in British Columbia (Canada)

CanChild (Canada)

The Children’s Hemiplegia and Stroke Association (U.S.)

ErinoakKids (Canada)

Hektoen International Journal (U.S.)
Medical humanities journal

Ontario Brain Injury Association (Canada)

Pain Week (U.S)

Reflections of a Grady Doctor (U.S.)
Hospital physician writing on medicine and teaching

Mitochondrial Disease

Searching for Solid Footing (Canada)

Neurological Disorders

Fighting Monsters with Rubber Swords (U.S.)

Three to Be (Canada)

Rare Disease

Carly Findley (Australia)

Disability Thinking (U.S.)

Mother of Bones (Canada)
Rare diseases, chromosome 12 microdeletion, skeletal dysplasia, lung restriction, jokes!

Star In Her Eye (U.S.)
Wolf-Hirschhorn Syndrome

Uncommon Sense (U.S.)

Seizures & Epilepsy

Epilepsy Ontario (Canada)

A Moon, Worn as if it had Been a Shell (U.S.)
Uncontrolled seizures; transition to adulthood

Calvin’s Story (U.S.)

Spinal Muscular Atrophy

Martyn Sibley (U.S.)
Spinal muscular atrophy and travel

Contact Us!

Know of a blog or website that you think we should include? Want to report an error or dead link? Please email us at lkinross@hollandbloorview.ca.
 

Note: Holland Bloorview Kids Rehabilitation Hospital does not endorse the views nor guarantee the accuracy of information on third-party sites