A collection of blogs, websites and other links and resources for parents of children with disabilities and chronic health conditions and the professionals who work with them.
Index
Autism & Aspergers • Complex Special Needs • Cerebral Palsy • Developmental Disability • Disability Activism & Advocacy • Disability & Race • Down Syndrome • Education • General Special Needs • Intellectual Disabilities • Limb Difference • Medical Journals, Doctors & Medical Information • Mitochondrial Disease • Neurological Disorders • Physical Disability • Rare Disease • Seizures & Epilepsy • Spinal Muscular Atrophy • Accessible Travel, Fashion & Lifestyle
Autism & Aspergers
Autism Ontario (Canada)
Autism and Oughtisms (New Zealand)
Autism Speaks (Canada)
Canadian National Autism Foundation (Canada)
Cracked Mirror in Shalott (U.S.)
Donna Williams' Blog (U.S.)
Geneva Centre for Autism (Canada)
Kerry’s Place Autism Services (Canada)
Kinark Child and Family Services (Canada)
Mule and Muse Productions (U.S.)
Parenting Autistic Children with Love & Acceptance (Country?)
Science Daily Autism News (U.S.)
Steph’s Two Girls (U.K.)
Surrey Place Centre (Canada)
Developmental disabilities and Autism
ThAutcast (U.S.)
Facebook page
The Thinking Person's Guide to Autism (U.S.)
Was This in the Plan? (U.K.)
Costello syndrome and Asperger syndrome
Complex Special Needs
Jennifer Johannesen (Canada)
Insights from a mom whose son had complex medical needs and disabilities and died at age 12; author of No Ordinary Boy
Complex Child (U.S.)
Not the Former Things (U.S.)
Cerebral Palsy
The American Academy for Cerebral Palsy and Developmental Medicine (U.S.)
The Caregivers’ Living Room (Canada)
Chasing Rainbows (U.S.)
CP-Net (Canada)
CP Teens Blog (U.K.)
Disabled Families (Canada)
The Early Birdies (U.S.)br />Cerebral palsy, preemie, tube-fed with real food
Free as Trees (Canada)
Cerebral palsy, augmentative communication, service dog
I Have Cerebral Palsy — So What, I'm Still Awesome! (U.S.)
14-year-old with CP
Love That Max (U.S.)
Ontario Federation for Cerebral Palsy (Canada)
That Crazy Crippled Chick (U.S.)
View from a Walking Frame (U.K.)
World Cerebral Palsy Day (Worldwide; Australia-based)
Zachary Fenell (U.S.)
Developmental Disability
Disability Scoop (U.S.)
Disability Activism & Advocacy
ARCH Disability Law Centre (Canada)
A specialty legal clinic based in Toronto.
Disability Rights Education & Defense Fund (U.S.)
Disability United (U.K.)
How Did We Get Into This Mess? (U.S.)
Disability rights journalist David M. Perry
SSAH /Passport Coalition (Ontario)
Disability & Race
Autistic Hoya (U.S.)
Ramp Your Voice with Vilissa (U.S.)
Empowering black disabled women
Down Syndrome
Canadian Down Syndrome Society (Canada)
Conny Wenk (Germany)
Downs Side Up (U.K.)
Down Syndrome Association of York Region (Canada)
Down Syndrome Education International (U.K.)
Down Syndrome Research Foundation (Canada)
Durham Down Syndrome Association (Canada)
Eliana Tiardio (U.S.)
In Spanish and English
Enjoying the Small Things (U.S.)
Grace in the Ordinary (U.S.)
Happy Soul Project (Canada)
Noah’s Dad (U.S.)
General Special Needs
Abilities (Canada)
Aidis Trust Blog (U.K.)
Ability Online (Canada)
The Accessible Stall (U.S.)
Podcast
All Together Now Blog (U.K.)
Back Pain Blog UK (U.K.)
Carers Trust Blog (U.K)
Child Development Institute (Canada)
Children’s Treatment Network (Canada)
The Conversation Library (Canada)
A fascinating series of videos with parents of children with disabilities and people with disabilities. By Jennifer Johannesen.
Disability Studies, Temple U. (U.S.)
Disability Today Network (Canada)
DisabledGo (U.K.)
Diverse City Press (Canada)
Publishers of educational materials for people with disabilities and their care providers.
Easter Seals (Canada)
Ethos Disability Blog (U.K.)
Exceptional Parent (U.S.)
Family Alliance (Canada)
Friendship Circle (U.S.)
Inclusion Press (Canada)
March of Dimes Canada (Canada)
Media Dis&Dat (U.S.)
News stories on disability
Mumsnet (U.K.)
Large U.K. parenting blog with special-needs section
New York Times (U.S.)
Opinion series on disability
Not Standing Still’s Disease (U.S.)
Ouch: Disability Talk (U.K)
BBC podcast
Partners for Planning (Canada)
Social Emotional Enhancement and Development (Canada)
“The Social Emotional Enhancement and Development website aims to provide evidence based resources to promote social emotional competencies of children with special needs. The content of the website is managed by the Psycho-social team at BC Centre for Ability.”
Special Needs Jungle (U.K)
Support for Special Needs (U.S.)
Through the Looking Glass (U.S.)
Today’s Kids in Motion (Canada)
Today’s Parent (Canada)
The World of Special Olympics (U.S.)
When Tania Talks (U.K.) Children's hospital blogsArnold Palmer Hospital for Children Illuminate blog
Children's Minnesota Mighty blog
Intellectual Disabilities
Community Living Ontario (Canada)
ConnectABILITY (Canada)
Faith and Light (France)
Christian communities that foster friendship with people with intellectual disabilities, in 80 countries
L’Arche Canada (Canada)
Limb Difference
Born Just Right (U.S.)
Medical Journals, Doctors & Medical Information
About Kids Health (Canada)
American Academy of Physical Medicine and Rehabilitation (U.S.)
American Congress of Rehabilitation Medicine (U.S.)
Brainstreams (Canada)
A project of the B.C. Brain Injury Association
Canadian Association of Physical Medicine & Rehabilitation (Canada)
Community Brain Injury Program for Children & Youth in British Columbia (Canada)
CanChild (Canada)
The Children’s Hemiplegia and Stroke Association (U.S.)
ErinoakKids (Canada)
Hektoen International Journal (U.S.)
Medical humanities journal
Ontario Brain Injury Association (Canada)
Pain Week (U.S)
Reflections of a Grady Doctor (U.S.)
Hospital physician writing on medicine and teaching
Mitochondrial Disease
Searching for Solid Footing (Canada)
Physical Disability
Bad Cripple (U.S.)
Claiming Crip (U.S.)
JBOT (U.K.)
Of Battered Aspect (Canada)
The Inclusive Home (U.K.)
Slow Walkers See More (U.S.)
Thinking Out Loud (U.K.)
Wheelchair Junkie (U.S.)
Words I Wheel By (U.S.)
Rare Disease
Carly Findley (Australia)
Disability Thinking (U.S.)
Mother of Bones (Canada)
Rare diseases, chromosome 12 microdeletion, skeletal dysplasia, lung restriction, jokes!
Star In Her Eye (U.S.)
Wolf-Hirschhorn Syndrome
Uncommon Sense (U.S.)
Seizures & Epilepsy
Epilepsy Ontario (Canada)
A Moon, Worn as if it had Been a Shell (U.S.)
Uncontrolled seizures; transition to adulthood
Calvin’s Story (U.S.)
Spinal Muscular Atrophy
Martyn Sibley (U.S.)
Spinal muscular atrophy and travel
Accessible Travel, Fashion & Lifestyle
Blue Badge Style Blog (U.K.)
Curb Free with Cory Lee (U.S.)
Free Weelin’ (U.S.)
Have Wheelchair, Will Travel (Australia)
Limitless Travel (U.K.)
Little Miss Turtle (Germany)
Sarah in Wonderland (U.K.)
Simply Emma (U.K.)
Tourism is for Everybody (U.K.)
Visits Unlimited (U.K.)
Wheelingalong24 (U.K.)
Contact Us!
Know of a blog or website that you think we should include? Want to report an error or dead link? Please email us at lkinross@hollandbloorview.ca.
Note: Holland Bloorview Kids Rehabilitation Hospital does not endorse the views nor guarantee the accuracy of information on third-party sites
