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Canadian Neuromuscular Disease Registry (CNDR)


The Canadian Neuromuscular Disease Registry (CNDR) is a Canada-wide registry for people diagnosed with a neuromuscular disease. It collects medical and contact information from individuals across the country. CNDR will help improve our understanding of neuromuscular disease and generate appropriate clinical research.

Call to action

Do you have a neuromuscular condition? Do you want to participate more in research and help researchers plan studies?

Who can participate

We are looking for Holland Bloorview clients to participate. We are looking for children/youth who:

•  Are diagnosed with a neuromuscular condition

•  Between the ages of 0 and 18 years old

Funding agency

Canadian Neuromuscular Disease Registry

What's involved

Your medical chart will be reviewed by the research team and information will be inputted into the CNDR database. This information will be updated on a yearly basis or when significant changes occur.

As an optional part of the study, you can choose to be contacted by CNDR for research opportunities.

Interested in participating

If you are interested in participating in this study or have additional questions, please contact the research team at or 416-425-6220 ext. 6943 with your interest, and they will get back to you shortly. Contacting us does not obligate you or your child to participate in the study.

Recruitment is ongoing.

Additional information

Version 1 (11/22/2023), REB#: 0463

Canadian Neuromuscular Disease Registry

Learn more about this study