Understanding pain trajectories and their association with well-being in children and youth with cerebral palsy
Summary
We are asking children and youth with cerebral palsy to help us learn about if they hurt and if it affects them. This study will help us better understand about if and how much pain is felt by children and youth with cerebral palsy.
Researcher(s)
Dr. Ronit Mesterman
Dr. Darcy Fehlings, CP Discovery Lab
Call to action
You will help families, clinicians and researchers about how pain and well-being in children and youth with cerebral palsy changes over time.
Who can participate
Children and youth who ...
- are 8 to 18 years old
- have cerebral palsy
- can communicate with or without assistive devices
- can complete a sorting task
- are current or past clients of McMaster Children's Hospital, Holland Bloorview or Grandview treatment centres
What's involved
We will email you one time every week for five weeks, then once at six and at 12 months
The first meeting will be done using Zoom and will last one to one and a half hours.
The next four questionnaires will be emailed and will take 5 minutes each.
The last three questions emailed will take about 15 minutes each.
We will ask you questions about if you have pain, what the pain is like and you it makes you feel and affects you.
Evening and weekend appointments are possible.
Deadline
Interested in participating
If you have any questions or are interested in participating, please contact:
Sarah Hopmans, 905-407-8667, hopmansn@mcmaster.ca OR Heather Shearer, 1-800-363-2440 x 6597 (toll free), hshearer@hollandbloorview.ca
Additional information
Participants will receive a $25 gift card for the five-week period and up to 2 additional $20 gift cards as a thank-you for their time.
Participants are also eligible for community volunteer hours.
