ProFILE Lab - Publications

Little boy in library using a computer tablet.

The ProFILE Lab conducts research around promotion of the health and well-being of children with disabilities and long term conditions.

Click to see Dr. McPherson's publications on PubMed.

Here are some of our published research results:
 

ProFILE Selected Peer-Reviewed Publications

Campos, C, Duck, M, McQuillan, R, Brazill, L, Malik, S, Hartman, L, McPherson, AC, Gibson, B.E, & Jachyra, P. (in press) Exploring the role of physiotherapists in the care of children with autism spectrum disorder. Physical & Occupational Therapy in Pediatrics [WPOP-2018-0153].

McPherson, AC, Biddiss, E, Chen, L, Terrien Church, P, de Groot, JF, Keenan, S, King, GA, Lui, T, Maltas, D, Merette, C, Moffet, H, Moola, FJ, Schwellnus, H. (2019) Children and Teens in Charge of their Health (CATCH): A protocol for a feasibility randomized controlled trial of solution-focused coaching to foster healthy lifestyles in childhood disability. BMJ Open 9 (3). DOI: 10.1136/bmjopen-2018-025119.

Hamdani, S, Yee, T, Rowland, E, McPherson, AC (2019) Multi-stakeholder perspectives on perceived wellness of Special Olympics athletes. Disability and Health Journal (Early online 1 February).

McPherson, AC, Oake, M, Stinson, J. (2019) “Don’t sweat it buddy, it’s OK”: An exploration of the needs of adolescents with disabilities when designing a mobile application for weight management and healthy lifestyles. Disability and Rehabilitation (early online 28 January).

Hamdani, Y, Yee, T, Oake, M, McPherson, AC (2019) Multi-stakeholder perspectives on perceived wellness of Special Olympics athletes. Disability and Health Journal (Early online 1 February).

Edwards, B, Cameron, D, King, G & McPherson, AC. (In press) How students without special needs perceive social inclusion of children with physical impairments in mainstream schools: A scoping review. International Journal of Disability, Development and Education.

Provvidenza, C, Hartman, L, McPherson, AC. (2018) Fostering positive weight-related conversations between healthcare professionals, children and families: Development of a knowledge translation Casebook and evaluation protocol. Child: Care, Health and Development 45(1): 138-145 (early online 26 November).

Ball GDC, Birken C, Belanger S, Bridger T, Chanoine JP, Gehring ND, Gibson W, Hadjiyannakis S, Haines J, Hamilton J, Haqq A, Ho J, Irvine B, Legault L, Luca P, Maguire J, McPherson A, Morrison K, Wahi G, Weksberg R, Zwaigenbaum, L. (2018) Severe obesity and global developmental delay in preschool children. 2018. Canadian Paediatric Surveillance Program. Available online at: www.cpsp.cps.ca/publications/resource-articles.

Walker, M & McPherson, AC. (2018) Weight management services for an underserved population: A rapid review of the literature. Disability and Rehabilitation (early online 9 October).

Walker, M, Nixon, S, Haines, J, McPherson, AC. (2018) Examining risk factors for overweight and obesity in children with disabilities: A Commentary on Bronfenbrenner’s Ecological Systems Framework. Developmental Neurorehabilitation (early online 11 October).

King, GA, McPherson, AC, Mosleh, D, Hartman, L, Rapley, J, Pinto, M. (2018) Program opportunities of residential immersive life skills programs for youth with disabilities. Research in Developmental Disabilities 83, 233-246.

Jachyra, P, Anagnostou, E, Petta, C, Cosgrove, S, Chen, L, Capano, L, Moltisanti, L, Knibbe, TJ, McPherson, AC. (2018). Weighty conversations: Caregivers', children's, and clinicians' perspectives and experiences of discussing weight-related topics in healthcare consultations. Autism Research 11(11): 1500-1510 (early online 1 October).

Jachyra, P, Anagnostou, E, Petta, C, Cosgrove, S, Chen, L, Capano, L, Moltisanti, L, Knibbe, TJ, McPherson, AC. (2018) “Girls don’t have big tummies”: The experiences of weight-related discussions for children with Autism Spectrum Disorder. Autism (early online 24 September).

Hamdani, S, Yee, T, Rowland, E, McPherson, AC. (2018) Examining wellness in children and youth with intellectual and developmental disabilities: A scoping review. Current Developmental Disorders Reports 5 (3):165-196 (early online 11 July 2018).

Biddiss, E, Knibbe, TJ, Fehlings, D, McKeever, P, McPherson, AC. (2018) Positive distraction in paediatric healthcare waiting spaces: Sharing play not germs through inclusive, hands-free interactive media. Developmental Neurorehabilitation (early online 20 September).

King, GA, McPherson, AC, Kingsnorth, S, Gorter, JW, DeFinney, A (2018) Intervention strategies in residential immersive life skills programs for youth with disabilities: a study of active ingredients and program fidelity. Developmental Neurorehabilitation (early online 01 Aug 2018).

McPherson, AC, Knibbe, TJ, Peters, M, Swift, JA, Browne, N, Ball, GDC, Hamilton, J. (2018) Fat is really a four-letter word: Exploring weight-related communication best practices in children with and without disabilities and their caregivers. Child: Care, Health and Development, 44(4):636-643 (Early online 15 May 2018).

Rivera, J, McPherson, AC, Hamilton, J, Birken, C, Coons, M, Peters, M, Iyer, S, George, T, Nguyen, C, Stinson, J. (2018) User-centred design of a mobile app for weight and health management in adolescents with complex health needs: Qualitative study. JMIR Formative Research, 2(1):e7.

Koller, D, McPherson, AC, Lockwood, I, Moraes, S, Nolan, J. (2018) The Impact of Snoezelen in Pediatric Complex Continuing Care: A Pilot Study. Journal of Pediatric Rehabilitation Medicine, 11, 31-41.

Ballantyne, M, Bernardo, S, Sozer, A, Orava, T, McPherson, AC, Church, P, Fehlings, D. (2018) A whole new world: A qualitative investigation of parents’ experiences in transitioning their preterm child with cerebral palsy to developmental/rehabilitation services. Developmental Neurorehabilitation, 22 (2) 87-97 (early online 12 Mar 2018).

McPherson, AC, Rudzik, A, Kingsnorth, S, King, G, Gorter, JW, Morrison, A. (2018) “Ready to take on the world”: Experiences and understandings of independence after attending residential immersive life skills programs for youth with physical disabilities. Developmental Neurorehabilitation, 21 (2) 73-82 (early online 22 March 2016).

McPherson, AC, McAdam, L, Keenan, S, Schwellnus, H, Biddiss, E, DeFinney, A, English, K. (2018) A feasibility study using solution-focused coaching for health promotion in children and young people with Duchenne muscular dystrophy. Developmental Neurorehabilitation, 21 (2) 121-130 (early online 8 March 2017).

Arbour-Nicitopoulos, KP, Grassmann, V, Orr, K, McPherson, AC, Faulkner, GE, Wright, FW. (2018) A scoping review of inclusive out-of-school time physical activity programs for children and youth with physical disabilities. Adapted Physical Activity Quarterly, 35 (1) 111-138.

Hartman, L, McPherson, AC, Maxwell, J, Lindsay, S. (2018) Exploring the ICF-CY as a Framework to Inform Transition Programs from Paediatric to Adult Health Care. Developmental Neurorehabilitation, 21 (5), 312-325 (early online 23 May 2017).

Biddiss, E, Knibbe, TJ, Fehlings, D, McKeever, P, Cohen, A, McPherson, AC (2018). Interactive media as a tool for reducing waiting anxiety at pediatric rehabilitation hospitals: A randomized controlled trial. Developmental Medicine and Child Neurology, 60 (6), 602-610 (Early online 15 December 2017). DOI: 10.1111/dmcn.13646

Ahola Kohut, S, LeBlanc, C, O’Leary, K, McPherson, AC, McCarthy, E, Nguyen, C, Stinson, J. (2018). The Internet as a source of support for youth with chronic conditions: a qualitative study. Child: Care, Health & Development, 44 (2), 212-220 (early online 29 October 2017).

Team ABC3 (2017) The Team to Address Bariatric Care in Canadian Children (Team ABC3): Team Grant Study Protocol. BMC Research Notes, 10: 301.

Knibbe, TJ, McPherson, AC, Gladstone, B, Biddiss, E. (2017) “It’s all about incentive”: Social technology as a potential facilitator for self-determined physical activity participation for young people with physical disabilities. Developmental Neurorehabilitation, 21 (8), 521-530 (Early online 29 Sep 2017).

Knibbe, TJ, Biddiss, E, Gladstone, B, McPherson, AC. (2017) Characterizing socially supportive environments relating to physical activity participation for young people with physical disabilities. Developmental Neurorehabilitation, 20 (5) 294-300 (Early online 11 August 2016).

King, G, Parker, K, Peacocke, S, Curran, CJ, McPherson, AC, Chau, T, Widgett, E, Fehlings, D, Milo-Manson, G. (2017). Centres for Leadership: A Strategy for Academic Integration. Journal of Health Organization and Management 31 (3) doi: 10.1108/JHOM-11-2016-0225.

McPherson, AC, Swift, JA, Peters, M, Lyons, J, Knibbe, TJ, Church, P, Chen, L, Farrell, R, Gorter, JW. (2017) Communicating about obesity and weight-related topics with children with a physical disability and their families: spina bifida as an example. Disability and Rehabilitation 39 (8) 791-797 (early online 25 March 2016).

Ballantyne, M, Orava, T, Bernardo, S, McPherson, AC, Church, P, Fehlings, D. (Accepted) Parents’ early healthcare transition experiences with preterm and acutely ill infants: A scoping review. Child Care, Health and Development.

McPherson, AC, Hamilton, J, Kingsnorth, S, Knibbe, TJ, Peters, M, Swift, JA, Krog, K, Chen, L, Steinberg, A, Ball, GDC. Talking with children and families about obesity and weight-related topics: A scoping review of best practices. Obesity Reviews 18 (2) 164-182 (early online 26 Nov 2016).

McPherson, AC, King, G, Rudzik, A, Kingsnorth, S, Gorter, JW and the Ontario Independence Program Research (OIPR) team (2016). Optimizing life success through residential immersive life skills programs for youth with disabilities: Study protocol of a mixed-methods, prospective, comparative cohort study. BMC Pediatrics. 16:153.

Shen, QA, Doyle-Thomas, KAR, Beesley, L, Karmali, A, Williams, L, Tanel, N, McPherson, AC. (2016) How should we engage parents as co-researchers in health research? A scoping review of current practices. Health Expectations (early online 12 August 2016).

Heller, M, Gambino, S, Church, P, Lindsay, S, Kaufman, M, McPherson, AC. (2016) Sex, Romance & Spina Bifida: A qualitative study exploring sexuality and relationships in young people with spina bifida and their partners. Journal of Adolescent Health 59 (2), 182–188. DOI: 10.1016/j.jadohealth.2016.03.037 (early online 21 May 2016).

Lindsay, S, Fellin, M, Cruickshank, H, McPherson, A, Maxwell, J. (2016) Youth and parents' experiences of a new inter-agency transition model for spina bifida compared to youth who did not take part in the model. Disability and Health Journal 9 (4), 705-712. (early online 27 May 2016).

Rivera, J, McPherson, A, Hamilton, J, Birken, C, Coons, M, Iyer, S, Agarwal, A, Lalloo, C, Stinson, J. (2016) Mobile Applications for Weight Management: A Scoping Review. Journal of Medical Internet Research 4 (3) Jul-Sept.

King, G, Kingsnorth, S, McPherson, AC, Jones-Galley, K, Pinto, M, Fellin, M, Timbrell, N Savage, D. (2016) Residential Immersive Life Skills Programs for Youth with Physical Disabilities: A Pilot Study of Program Opportunities, Provider Strategies, and Youth Experiences. Research in Developmental Disabilities 55, 242–255.

McPherson, AC, Ball, GDC, Maltais, DB, Swift, JA, Cairney, J, Knibbe, TJ, Krog, K. (2016) A Call to Action: Setting The Research Agenda For Addressing Weight-Related Topics In Children With Physical Disabilities. Childhood Obesity (early online 30 Dec 2015).

Lindsay, S, McPherson, AC, Maxwell, J. (2016) School-work transitions among youth with spina bifida: Perspectives from youth, their parents, and health care providers. Disability and Rehabilitation. Early online (17 March 2016) DOI: 10.3109/09638288.2016.1153161.

Lindsay S, Cruickshank H, McPherson A, Maxwell J. (2016) Implementation of an inter-agency transition model for youth with spina bifida. Child: Care, Health & Development 42(2):203-12 (early online 17 Nov 2015).

Fischer, N, Church, P, Lyons, J, McPherson, AC. (2015) A qualitative exploration of the experiences of children with spina bifida and their parents around incontinence and social participation Child: Care, Health and Development, 41(6):954–962 (Early online 23 May 2015). DOI: 10.1111/cch.12257.

King G, McPherson AC, Kingsnorth S, et al. (2015) Residential immersive life skills programs for youth with disabilities: Service providers' perceptions of change processes. Disability and Rehabilitation 37(11):971-80 (Early online 1 May). DOI: 10.3109/09638288.2015.1031285.

Kingsnorth, S., King, G., McPherson, A. & Jones-Galley, K. (2015) A retrospective study of past graduates of a residential life skills program for youth with physical disabilities. Child: Care, Health and Development 41(3) 374-383. doi:10.1111/cch.12196 (early online 23 Sep 2014).

McPherson, AC, Leo, J, Lyons, J, Church, P, Chen, L, Swift, JA. (2014) An environmental scan of weight assessment and management practices in paediatric spina bifida clinics across Canada. Journal of Pediatric Rehabilitation Medicine 7(3):207-17. doi: 10.3233/PRM-140290.

King, G, McPherson, AC, Kingsnorth, S, Stewart, D, Glencross-Eimantas, T, Gorter, JW, Jones-Galley, K, Morrison, A, Isihi, AM (2014) Residential immersive life skills programs for youth with disabilities: Service providers’ perceptions of experiential benefits and key program features. Disability and Rehabilitation 37 (11): 971-980 (Early Online 19 August 2014).

Biddiss, E, Knibbe, TJ, McPherson, AC. (2014). The effectiveness of interventions aimed at reducing anxiety in healthcare waiting spaces: a systematic review of randomized and non-randomized trials. Anesthesia & Analgesia 119 (2):433-448.

McPherson, AC, Gofine, M, Stinson, J. (2014) Seeing is believing? A mixed methods study exploring the quality and perceived trustworthiness of online information about chronic conditions aimed at children and young people. Health Communication 29 (5) 473-482. doi: 10.1080/10410236.2013.768325.

McPherson, AC, Keith, R, Swift, JA. (2014) Obesity prevention for children with physical disabilities: a scoping review of physical activity and nutrition interventions. Disability and Rehabilitation. 36(19):1573-87. doi: 10.3109/09638288.2013.863391.

Keenan, S, King, G, Curran, CJ, McPherson, AC.(2014) Effectiveness of an Experiential Life Skills Intervention for Youth with a Disability. Physical and Occupational Therapy in Pediatrics, 34 (2), 119-131. doi:10.3109/01942638.2013.842200.

Patton, I & McPherson, AC. (2013) Anthropometric measurements in Canadian children: A scoping review. Canadian Journal of Public Health. 104(5):e369-e374.

Wells, F, Ritchie, D, McPherson, AC. (2013) "It is life threatening but I don’t mind”. A qualitative study using Photo Elicitation Interviews to explore young people’s experiences of renal replacement therapies. Child: Care, Health & Development 39 (4), 602–612.

McPherson, AC, Swift, JA, Yung, E, Lyons, J, Church, P. (2013) The assessment of weight status in children and young people attending a spina bifida outpatient clinic: a retrospective medical record review. Disability and Rehabilitation. Vol. 35 (25), 2123-2131.

Biddiss, E, McPherson, A, Shea, G, McKeever, P. (2013) The design and testing of interactive hospital spaces to meet the needs of waiting children. Health Environments Research & Design Journal 6(3), 49-68.

Price KJ, Wales J, Eiser C, Knowles, J, Heller, S, Freeman, J Brennan, A, McPherson, A, Wellington, J. (2013) Does an intensive self-management structured education course improve outcomes for children and young people with type 1 diabetes? The Kids In Control OF Food (KICk-OFF) cluster randomised controlled trial protocol. BMJ Open;3: e002429. doi:10.1136/bmjopen-2012-002429.

King, G, Curran, CJ, McPherson, AC. (2013) A Four-Part Ecological Model of Community-focused Therapeutic Recreation and Life Skills Services to Support the Participation of Children with Disabilities. Child: Care, Health & Development 39 (3), 325-336. DOI: 10.1111/j.1365-2214.2012.01390.x.

McPherson, AC & Lindsay, S. (2012) How do children with disabilities view ‘healthy living’? A pilot study. Disability & Health Journal 5 (3) 201-209.

Lindsay S, McPherson AC, Aslam H, McKeever P, Wright V. (2012) Exploring children’s perceptions of two school-based social inclusion programs: A pilot. Child and Youth Forum. DOI: 10.1007/s10566-012-9183-9.

Lindsay, SL & McPherson, AC. (2011) Experiences of social exclusion and bullying at school among children and youth with cerebral palsy. Disability & Rehabilitation. DOI: 10.3109/09638288.2011.587086.

Lindsay, S & McPherson, AC. (2011) Strategies for improving disability awareness and social inclusion: Listening to the voices of children with cerebral palsy Child: Care, Health & Development 38 (6) 809-816. DOI: 10.1111/j.1365-2214.2011.01308.x.

McPherson, AC & Redsell, SA. (2009) Factors affecting children's involvement in asthma consultations: a questionnaire survey of general practitioners and primary care asthma nurses. Primary Care Respiratory Journal 18(1), 15-20.

Glazebrook, C, McPherson, AC, Macdonald, IA, Swift, JA, Ramsay, C, Newbould, R. & Smyth, A. (2006) Asthma as a barrier to children's physical activity: implications for body mass index and mental health. Pediatrics 118(6), 2443-2449.

    McPherson, AC, Glazebrook, C, Forster, D, James, C & Smyth, A. (2006) A Randomised, Controlled Trial to evaluate an interactive educational computer package for children with Asthma. Pediatrics 117,1046-1054.

      ProFILE Selected Abstracts

      Volfson, Z, McPherson, A, Tomasone, J, Faulkner, G, Arbour-Nicitopoulos, K (2016) Journal of Exercise, Movement, and Sport 48 (1), 236.

      McPherson, AC, Ball, G, Swift, JA, Knibbe, TJ, Peters, M, Byrne, C, Chen, L, Krog, K, Steinberg, A, Kingsnorth, S, Philpott, J, Browne, N and Hamilton, J. How should we talk with children and families about obesity and weight-related topics: A scoping review to establish best practices. Obesity Reviews T5:S32:43.

      McPherson, AC, Jones-Galley, K, Gorter, JW (on behalf of the OIPR team) (2015) Essential ingredients of life-skills programs aiming to enhance transitions to adulthood for youth with disabilities: A breakfast symposium. Developmental Medicine and Child Neurology 57, Supp 5.

      McPherson, AC, Fellin, M, Maxwell, J, Hartman, L (2015) Development and Implementation of an Inter-Agency Transition Model for Youth with Spina Bifida. Archives of Physical Medicine and Rehabilitation 96 (10), e41.

      Heller, M, Gambino, S, Church, P, Lindsay, S, Kaufman, M, McPherson, AC (2015) Let’s Talk About Sex…And My Spina Bifida: A qualitative exploration about how young people with spina bifida discuss sex and disability with partners. Journal of Adolescent Health 56, S125–S126.

      McPherson, AC, Swift, JA, Chen, L#, Forhan, M (2015) Clinical dilemmas and research priorities in an “underserved population”: Obesity in young people with physical disabilities. Canadian Journal of Diabetes 39, S12.

      Patton, IT and McPherson, A (2015) Beyond Weight: The Development of a Health Screening Tool for Children and Youth. Canadian Journal of Diabetes, Vol. 39, S44.

      McPherson, AC, Keith, R, Swift, J (2013) Obesity-related health promotion interventions for children and young people with physical disabilities: state of the evidence. Developmental Medicine and Child Neurology 55 (Supp 3), 68.

      McPherson, AC, Swift, J, Lyons, J, Church, P, Chen, L. (2013) Why should we be concerned about obesity in children with disabilities? Canadian Journal of Diabetes; 37 (Supp 2), 239-240.

      ProFILE Selected Media

      March 4 2019: How to have body positive conversations abouthealthy eating. The New Family Blog and Podcast

      February 21 2019: Here’s how to talk about healthy habits inbody positive conversations with kids. Toronto Star

      January 30 2019: Eight ways to help a child with autismmanage their weight. Today's Parent

      Spring/Summer 2017: 'Living well with spina bifida and hydrocephalus: The benefits of sports and fitness'. Current: The magazine of the Spina Bifida and Hydrocephalus Association of Ontario (not available online)

      October 11 2016: A heavy discussion: how to talk to your kids about their weight. Today’s Parent

      August 22 2016: Why child disability research belongs inmainstream journals. Bloom

      February 10 2016: ‘A Call to Action’

        January 6 2016: ‘A Call To Action: Obesity In Children With Physical Disabilities’, Dr. Sharma’s Obesity Notes

          November 1 2015: Staying fit when disabled. Canadian Living Magazine

          Fall 2015: ‘Let’s Talk about Sex: What do young people living with spina bifida think?’ Current: The magazine of the Spina Bifida and Hydrocephalus Association of Ontario (not available online)

          May 2015: ‘Expert Advice: How to help your child with a physical disability stay active’. Parents Canada

          Spring/Summer 2014: ‘An accident waiting to happen: the stigma of incontinence’. Current: The magazine of the Spina Bifida and Hydrocephalus Association of Ontario (not available online)

            Jan 21 2014 ‘Medical websites for kids lacking’ http://issuu.com/hollandbloorview/docs/bloom_winter_2014_-_web/1?e=1952047/6413530