'We talk to each other every day about progress and things we’re having difficulty with,' says occupational therapist Kim Hurda. 'Being near to each other in our pods is extremely helpful.'

'Sometimes people think of accessibility as a nice to have, right? Whereas if it's anti-ableism... it speaks to the fact that a lot of this is structural violence.'

'We're still measuring a significant inequality here and finding other clues that ableist biases and provider attitudes are contributing,' says Ohio transplant surgeon Austin Schenk.

'Her value is not tied to what she can do or reach or check off. Her value is who she is.'

A father balances sharing 'the difficulty of parenting a medically complex, disabled child... with enough of the joy that nobody mistakes Bree for a burden on us.'