Ratings of experiences in appointments

Appointments at Holland Bloorview

Summary

Our research team thinks that you can help us understand the ways in which children/youth and parents/caregivers feel involved and not involved in their appointments. 

Researcher(s)

Gillian King, Virginia Wright, Jenny Ziviani, Lisa Chiarello, Heidi Schwellnus, Roger Ideishi, Matthew McLarnon

Participate in this study

Want to help us evaluate current questionnaires of client and caregiver involvement in appointments? Consider participating in our study so that we can make our questionnaires work!

Who can participate

• Children/Youth who are 8-18 years old, and are receiving Lokomat training through Holland Bloorview OR
• Children/Youth who are 8-18 years old, and are receiving group/individual therapeutic recreation/life skills interventions through Holland Bloorview OR
• Children/Youth who are 8-18 years old, and are receiving Occupational Therapy, Physical Therapy/Physiotherapy, or Speech-Language Pathology through Holland Bloorview OR
• Parents/Caregivers of Holland Bloorview clients who normally bring their child to their sessions at Holland Bloorview (outpatient) or who mainly interact with the Holland Bloorview service provider (inpatient/at Holland Bloorview, home, community, not at Holland Bloorview). The study is only looking at face-to-face appointments.  Parents/Caregivers should have children who are aged 0-18, and are receiving Occupational Therapy, Physical Therapy/Physiotherapy, or Speech-Language Pathology.

What's Involved

• fill out a Session Rating Scale (5-10 minutes) to rate your experiences in your/your child’s sessions, for no more than 6 months or for the duration of your “on-block”/training/treatment/intervention, whichever is first.
• answer some questions (15 minutes) to tell us about your involvement in the sessions overall, after your last Session Rating Scale
• (Children/youth only) answer some questions (15 minutes) to give us your feedback on the Session Rating Scale

Participants will receive a small token of appreciation at the end of their involvement in our study, a $25 gift card, to thank them for their time.

Please see the following for additional information.

Clients in Lokomat training:

• Fill out a questionnaire (5-10 minutes), one time, that will tell us about the way you think you keep trying when doing things

You don’t have to do this study if you are doing a Lokomat study. Whatever you decide will not change what you are doing in the Lokomat study you are in and will not affect the care you receive at Holland Bloorview. Your Lokomat Study PT will not know what you say in our study.

Clients/children/youth in group/individual therapeutic recreation/life skills interventions:

• Fill out a questionnaire (5-10 minutes) to tell us how you felt while doing three of your sessions – once at the beginning of your intervention, once in the middle, and once at the end

You don’t have to do this study. Whatever you decide will not affect the care you receive through Holland Bloorview. Your service providers will not know what you say in our study.

Parents/Caregivers of clients getting OT, PT or SLP:

• fill out a questionnaire (5 minutes to answer) to rate your child’s experiences in these sessions, if you were in the session with your child.

Please note that for you to participate, we also need the service provider who does your session to also participate.

You don’t have to do this study. Whatever you decide will not affect the care you receive through Holland Bloorview. Your service provider will not know what you say in our study and you will not know what your service provider says in our study.

Clients getting OT, PT, or SLP:

• fill out a questionnaire (5-10 minutes) to tell us how you felt while doing three of your sessions – once at the beginning of your intervention, once in the middle, and once at the end

Please note that for you to participate, we also need the service provider who does your session to also participate.

You don’t have to do this study. Whatever you decide will not affect the care you receive through Holland Bloorview. Your service provider will not know what you say in our study and you will not know what your service provider says in our study.

Deadline

Recruitment is closed at this time.

Interested in participating

If you are interested in participating in this study or have additional questions, please contact Madhu Pinto at mpinto@hollandbloorview.ca or by phone at 1-800-363-2440 x 3516 with your interest, and she will get back to your shortly. Contacting us does not obligate you to participate in the study.

Funding Agency

Canadian Institutes of Health Research (2014-2019), $616,110