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Alert

Holiday closures: our outpatient programs will be closed from Dec. 25, 2024 to Jan. 1, 2025. Regular services resume January 2, 2024. Day program will be closed from Dec. 23 to Dec. 27, 2024 inclusive, and will be closed on Jan. 1, 2025. Orthotics and prosthetics will be available for urgent care.

#009900

Evaluating current questionnaires of client and caregiver involvement in appointments

Appointments at Holland Bloorview


Summary

Our research team thinks that you can help us understand the ways in which children/youth and parents/caregivers feel involved and not involved in their appointments.


Researcher(s)

Gillian KingVirginia Wright, Jenny Ziviani, Lisa Chiarello, Heidi Schwellnus, Roger Ideishi, Matthew McLarnon


Participate in this study

Are you a Holland Bloorview client who does Lokomat training? Want to help us evaluate current questionnaires of client involvement in appointments? Consider participating in our study so that we can make our questionnaires the best they can be!


Who can participate

Children/youth who are between the ages of 8 and 18, and who get Lokomat training


What's Involved

We would like you to answer our questionnaire.

You would do this questionnaire for two of your Lokomat training sessions that are no more than 14 days apart from each other. We would try and get you to do the questionnaire for two sessions 3-7 days apart from each other. The questionnaire will ask you to rate your experiences in your Lokomat training. The questionnaire would take about 5-10 minutes to answer.

Participants will receive a small token of appreciation at the end of their involvement in our study, a $25 gift card, to thank them for their time. Please note that for you to participate, we also need the PT who does your Lokomat training to also participate. So, we will be recruiting Lokomat Study PTs first. This is to make sure that we have a Lokomat Study PT linked with a client in our study. Your Lokomat Study PT will not know what you say in our study, and you will not know what your Lokomat Study PT says in our study.

You do not have to do this study if you are in any of the Lokomat studies. Whatever you decide will not change what you are doing in the Lokomat study you are in and will not affect the care you receive at Holland Bloorview.


Deadline

Recruitment is closed at this time.


Interested in participating

If you are interested in participating in this study or have additional questions, please contact Madhu Pinto at mpinto@hollandbloorview.ca or by phone at 1-800-363-2440 x3516 with your interest, and she will get back to your shortly. Contacting us does not obligate you to participate in the study.


Funding Agency

Canadian Institutes of Health Research (2014-2019), $616,110

Learn more about this study