- As a sibling, you are/can be an important part of your sibling’s care and your contributions matter!
- This can be a confusing and difficult time for yourself and your family, but you are doing the best you can! Remember to take breaks. See below for a list of fun activities you can do in the hospital (some may require adult supervision).
- Being in the hospital can feel lonely. To make it more enjoyable, try to think of fun activities you can do with your sibling and family such as: board games, movies, or going for walks.
- Talking to friends, join a support group, or reach out to other siblings. The Sibling Support Program at Holland Bloorview (listed down below) can connect you to other siblings.
- Its easy to forget about your own health when you are worrying about your sibling. Make sure you-re eating well, resting, getting enough sleep and taking care of your mental-health.
- Help your sibling decorate their room with pictures, posters, and arts & crafts.
- Talk to your sibling about their progress. Even on difficult days, they are being a super patient!
- Write down something you accomplished or are proud of yourself for today
- Sometimes you might feel overwhelmed; it’s always good to talk to someone about how you feel (your other siblings or your parents). It’s normal to feel a range of emotions. Remember, it’s okay to not be perfect.
- Talk to your parents about any activities that you would like to do or feelings you are having. They are there to support you and your sibling.
Computers
- A computer in the 3rd floor Family Lounge is available 24 hours daily.
- Computers in the Family Resource Centre are available Monday to Friday between 9:00AM to 5:00PM.
WI-FI
- The Wi-Fi Network is: HBguest and the password is: hollandbloorview
Holland Bloorview Sibling Support Group
- The Sibling Support Program gives siblings the opportunity to relax, unwind, and meet peers who might share lived experiences. It provides a safe space to talk about what it’s like to be a sibling of someone with a disability.
- Eligibility: For anyone aged 7-18, who has a sibling with a disability, diagnosis or medical complexity.
- Register by following the QR code and filling out the Redcap form or contact siblingsupport@hollandbloorview.ca for more information
- The SibKit is a booklet filled with interactive tools and tips for siblings of kids with disabilities, medical complexities or diagnoses.
- These tools and tips can support you to:
- Understand your sibling’s diagnosis
- Feel more included in your sibling’s journey
- Work through feelings you might experience
- Learn about who will help support your family
- You can get a physical copy of this book in the Resource Centre
ScreenPlay 2.0
- Visit the interactive electronic technology on the 2nd floor (waiting area)
- Roll or step on the carpeted sensors on the floor to change the pictures on the screen
Bootle Blast
- Bootle Blast is a video game for home practice of motor skills. This game tracks movements and manipulation of real-life objects.
- A demo of this game is available in the Family Resource Centre and is available to clients and siblings
The Ronald McDonald Playroom
- The Ronald McDonald Playroom is a drop-in space that gives children the chance to relax and unwind. This service is open to siblings of in-patient clients.
- Open Monday to Friday from 8:15am-5:00pm, room 1E130
The Teen Lounge
- The Teen Lounge is a space for teens to hang out and connect to other teens
- Located across the BIRT cafeteria.
- Open Monday to Thursday between 11:30am-1:00pm and in the evening from 4:00pm-9:30pm.
- Some activities available are the PlayStation 4 and 5, Nintendo Switch, puzzles, Netflix, movies, boardgames, and much more.
- Teens can also connect to a Lived Experience mentor.
iPad Loan
- inpatients and/or their sibling can connect with a Lived Experience Mentor in the Teen Lounge to borrow an iPad.
- Parent/guardian permission required
- Upopolis Sibling Island is a private online group specifically created for youth aged 10 – 18 who have a sibling with a chronic or critical illness, medical condition, or disability.
- The Island is monitored led by a Certified Child Life Specialist who monitors it daily, and provides ongoing psychosocial support, education, and engagement opportunities to the healthy siblings.
- The Sibling Island provides a space for youth to openly express themselves, as well as meet and connect with a community of other siblings who are facing similar life situations.
- Young Carers are kids under the age of 18, who are in a care-giving role for a parent, grandparent, sibling or relative with a chronic or life-threatening illness, disability, addiction, mental illness, or language barrier.
- YCP aims to provide therapeutic and recreational programming to help children and youth with care-giving responsibilities cope and interact with other young folks that have similar experiences.
- These four printable pages will help siblings explore their thoughts and feelings— and help encourage conversation about them
- This magazine, available in English and French, includes information and stories about what being a young carer is like, emotional regulation and self-care strategies, tips for balancing school and caregiving, media recommendations, and where to find help.
- Siblings Canada, an initiative of Canadian Centre for Caregiver Excellence, raises awareness of the critical role siblings play in creating robust and responsive systems of care for people with disabilities.
- The mission of the Young Carers Project is to educate the community about the existence and needs of young carers and motivate the community to action.
- Supports include finding out if you are a young carer, ways to support a young carer, personal stories, guides and documentary, and other resources.
Community Living Toronto Sibshops
- Sibshops provide opportunities for siblings of children with special needs to obtain peer-to-peer support and education in an informal fun setting.
- Sibling workshops are for children ages 8 to 12 with mentoring opportunities for older siblings, ages 14 to 16.
- Workshops engage siblings in fun themed activities while addressing the unique issues having siblings with special needs at home, school and during extra-curricular activities.
- For more information about Sibshops, please contact Wendy Dyke at 647-729-3627 or Cate Whiteley at 647-729-3635.
Do you have a suggestion or resource for this tipsheet? We always welcome new ideas.
Let us know at resourcecentre@hollandbloorview.ca
Last updated September 2024 by the Family Support Team and Family Leaders
You can find more information like this in the Grocery Foundation Family Resource Centre