Engagement of Children with Disabilities in Rehabilitation Services
Summary
Our team wants to refine the design of an engagement measure for children, called the Pediatric Rehabilitation Intervention Measure of Engagement for Children or shortly PRIME-C, as well as to learn about its accessibility and administration mode to better suit the needs of end users – children with developmental disabilities.
Researcher(s)
Gillian King, Ph.D., Monika Novak Pavlic, Ph.D., Eric Smart, Ph.D., Brendan Wylie-Toal, Cynthia Lennon, Taryn Eickmeier, Ph.D., Lisa Chiarello, Ph.D., Matthew MxLarnon, Ph.D., Michelle Phoenix, Ph.D., Madhu Pinto
Call to action
Do you have a developmental disability, are between 15 and 25 years old and have experience with rehabilitation services (e.g., physiotherapy, occupational therapy, speech-language pathology)? We are also looking for parents of children with developmental disabilities (8-18 years) and clinicians working in the field of pediatric rehabilitation. Consider participating in a research study looking at how child engagement in therapy is measured.
Who can participate
- Children and youth with a developmental disability (15-25 years) who:
- are current or former clients of Holland Bloorview, Grandview Kids, KidsAbility Centre for Child Development or TVCC,
- have an established communication modality (e.g., speech, writing, sign language, AAC), and
- are proficient in English.
- Parents of children with developmental disabilities (8-18 years):
- whose child/children is a current client of Holland Bloorview, Grandview Kids, KidsAbility Centre for Child Development or TVCC
- whose child/children with a disability has an established communication modality (e.g., speech, writing, sign language, AAC), and
- are proficient in English.
- Clinicians and Program Managers who hold an active appointment with Holland Bloorview, Grandview Kids, KidsAbility Centre for Child Development or Thames Valley Children’s Centre (TVCC).
Funding agency
Canadian Institutes of Health Research, Martha and Vincent Wagar Intellectual Disability and Autism Research Fund
What's involved
You will be asked to review the PRIME-C measure in your own time and participate in a group discussion with other participants about your opinion of PRIME-C. These focus groups will be held virtually (over Zoom). Soon after the focus group, you will be asked to fill out a survey to express your agreement with the recommendations for the measure’s refinement. The expected study involvement will be around two hours over a period of one month.
Deadline
Interested in participating
If you interested in participating in this study, please contact Monika Novak Pavlic at mnovakpavlic@hollandbloorview.ca or 416-425-6220 x3516.
Contacting us does not obligate you to participate in the study.
Additional information
The Engagement of Children with Disabilities in Pediatric Rehabilitation Interventions: Usability, Utility, and Psychometric Properties of the Pediatric Rehabilitation Intervention Measure of Engagement – Child Version (PRIME-C)
