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Our very own Nydia Langill lights Parapan Am torch
Long-time Holland Bloorview client and elite swimmer Nydia Langill lit the Parapan Am Games torch last night in Mississauga. I met Nydia ...
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'P-what?' A dad teaches doctors about child's rare condition
Yesterday a dad came to visit me.His name is Syed Haider and his daughter Zahra, 5, has pantothenate kinase-associated neurodegeneration ...
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The Hungarian mom who started the play revolution
This is the Hungarian mom who was frustrated because her child with disability couldn't play with his siblings and peers at the playgroun...
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There isn't a detour around grief
A very wiseperson—Julie Keon, who wrote What I would Tell You: One Mother's Adventure with Medical Fragility—told me that youcan't gr...
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When a clown is the best medicine
Lorrine Peruzzo anticipated the daily unpacking and packing of special dressings in her daughter Katie's pressure sores with dread.Katie,...
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Why is beauty essential for disabled children, but not adults?
In 2006, Holland Bloorview broke the institutional mould when it opened the doors of an extraordinary building that would operate as a ch...
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Happiness is parenting a special-needs child
By Val LustedI never thought I'd be writing my very first blog with this title!However, when 2015 appeared on the horizon, I decided to s...
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'I felt so small:' Parent tips on speaking up with specialists
By Sue Robins and Isabel JordanWhen my son was diagnosed with Down syndrome 12 years ago, our family was thrust into a world of medical s...
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'I'm ashamed to be jealous:' A special-needs dad
Yesterday this candid piece about being a special-needs dad on LinkedIn blew me away. It's such a rich account of the many emotions exper...
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It's hard to tell when special-needs parents are 'drowning'
By Tina SzymczakIn 2010, our darkest times as a family, I began to use the analogy of a swimming pool to describe the difficult parts of ...
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