Concussion and neurodevelopmental disorders: Exploring experiences and access to healthcare services
Summary
Youth with a neurodevelopmental disorder (NDD) are at risk of experiencing concussion, however we have limited knowledge about their experiences or outcomes. There are no clinical guidelines for concussion management that considers the unique needs of these individuals.
Call to action
We are looking for youth with a NDD who have had a concussion, caregivers, and clinicians to participate in this research project.
Who can participate
- Youth who have a NDD (e.g. autism spectrum disorder, attention-deficit/hyperactivity disorder, learning disabilities) and have experienced a concussion
- Caregivers of youth who have a NDD (e.g. autism spectrum disorder, attention- deficit/hyperactivity disorder, learning disabilities) and have experienced a concussion
- Clinicians with experience working with youth who have a NDD (e.g. autism spectrum disorder, attention-deficit/hyperactivity disorder, learning disabilities) and concussion
Funding agency
Empowering Next-Generation Researchers in Perinatal and Child Health (ENRICH)
What's involved
Youth/caregiver participants: You will participate in an interview about your/your child’s experience having a neurodevelopmental disorder and a concussion. We will also ask you questions about your experience accessing concussion-related healthcare services. We will ask you to complete a short survey to understand more about you.
Clinician participants: You will participate in an interview about your experience providing health care services for youth who have a neurodevelopmental disorder and a concussion. We will ask you to complete a short survey to understand more about you.
Participants will receive a gift card to thank them for their time.
Deadline
Interested in participating
If you are interested in participating in this study or have additional questions, please contact Kylie Mallory at thenovellab@hollandbloorview.ca with your interest, and they will get back to you shortly. Contacting us does not obligate you or your child to participate in the study.
