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By Louise Kinross
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Here are some quotes to draw you into the content:
-From the author of Unfit Parent: A Disabled Mother Challenges An Inaccessible World: “Needing care does not make you incapable of providing care. It doesn’t somehow make you a worse parent if you need help.” (See Role Model)
-From a parent on her time with family therapist Leticia Toro in the Extensive Needs Service: "Sometimes my two hours in Leticia's room were the only two hours I felt safe in a whole week. She's the only person I tell the hardest parts of my life to." (See Mental Health)
-From a support worker on the benefits of Xenia adapted concerts: “He can vocalize, cough, be suctioned, or stretch out on the floor without having to leave the venue space.” (See Fun Stuff)
-From a former Holland Bloorview parent leading a workshop for clinicians on how to communicate with caregivers: "I piloted this workshop with 20 pediatric occupational therapists. They said they were trained to be hyper-positive, but sometimes the parent isn’t in that space. Often there is a big, gaping hole of despair that no one wants to look at.” (See Clinical Care)
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