CDARS - Our Team
Meet the staff and students in the CDARS Lab
Dr. Barbara Gibson’s research program investigates the intersections of social, cultural, and institutional practices in producing health, inclusion/exclusion, and identity with disabled young people. The aim is to improve the wellbeing of disabled young people through a critical interrogation of key concepts (e.g. disability/normalcy, in/dependence, quality of life) underpinning children’s rehabilitation and societal understandings of disability. The work is interdisciplinary and intersectional; drawing upon sociological studies of health, bioethics, postmodern scholarships, and critical disability studies. Dr. Gibson is a Professor in the Department of Physical Therapy at the University of Toronto and a Senior Scientist in the Bloorview Research Institute. She is a member of the Joint Centre for Bioethics and an Adjunct Fellow at the Centre for Critical Qualitative Health Research at the University of Toronto. Dr. Gibson holds the Bloorview Kids Foundation Chair in Childhood Disability Studies.
Bhavnita Mistry is the research manager for the CDARS lab.Her work critically explores the experiences of young disabled persons (children and youth) living with their conditions and how this affects their health, wellbeing and participation using various qualitative methods. She provides research and administrative support to Dr. Gibson and all CDARS lab trainees. She received her Masters in Geography (Health Geography) from the University of Ottawa. Her research focused on how health risk information is communicated to the public, where her thesis examined the media representations of the E.coli water contamination in Walkerton, Ontario.
Bhavnita can be reached at email@example.com
Patrick Jachyra is a PhD candidate supervised by Dr. Barbara Gibson at the Critical Disability and Rehabilitation Studies Unit, and the Rehabilitation Sciences Institute at the University of Toronto. He is a trainee in the national Autism Research Training Program supported by the Canadian Institutes of Health Research, and also is a trainee in the Collaborative Program in Bioethics at the Joint Centre for Bioethics at the University of Toronto.
Patrick’s doctoral research explores the experiences of children and youth diagnosed with Autism Spectrum Disorder who participate (and or indeed do not participate) in sport, physical activity, and physical culture. Patrick’s research is driven to understand the optimal physical activities, spaces, practices, cultures and policies that support the health and well-being of all children and youth on the autism spectrum. To date, Patrick has delivered invited international presentations about his research in the UK, and in Japan, and his research has been profiled with the Department of Physical Therapy at the University of Toronto. Patrick’s research has been supported by the 2018 Ontario Autism Scholars Award, Joseph-Armand Bombardier Canada Graduate Scholarships Program Doctoral Scholarship from the Social Sciences and Humanities Research Council (SSHRC), and the Bloorview research Institute. His leadership work has also been recognized, and is the recipient of the 2018 Gordon Cressy Student Leadership Award, 2017 Awards of Excellence Graduate Scholars Award from the University of Toronto Alumni Association, along with the 2016 Dean's Student Leadership Award from the Faculty of Kinesiology and Physical Education, University of Toronto. Patrick is happy to be contacted at: firstname.lastname@example.org to discuss his research and community involvement further.
Campos, C., Duck, M., McQuillan, R., Brazill, L, Malik, S., Hartman, L., McPherson, A., Gibson, B.E., & Jachyra, P.(In Press). Exploring the role of physiotherapists in the care of children with autism spectrum disorder. Physical and Occupational Therapy in Pediatrics.
Nichols, D., Jachyra, P., Fusco, C., Gibson, BE., & Setchell, J. (2018). Keep fit: Marginal ideas in contemporary therapeutic exercise. Qualitative Research in Sport, Exercise and Health. Special Issue: Exercise as Medicine, 10 (4) 400-411.
Gregor, S., Bruni, N., McDonald, A., Schwarts, L., Griknic, P., Gibson, B.E. Thille, P., Gabison, S., & Jachyra, P. (2018). Parents’ perspectives of physical activity participation among Canadian adolescents diagnosed with Autism Spectrum Disorder. Research in Autism Spectrum Disorders, 48, 53-62.
Jachyra, P., Anagnostou, E., Petta, C., Cosgrove, S., Chen, L., Capano, L., Molitisanti, L., Knibbe, TJ, & McPherson AC (2018). “Girl’s don’t have big tummies”: Children’s experiences of discussing weight-related topics in healthcare consultations. Autism. Ahead of Print
Jachyra, P., Anagnostou, E., Petta, C., Cosgrove, S., Chen, L., Capano, L., Molitisanti, L., Knibbe, TJ, & McPherson AC. (2018). Weighty conversations: Discussing weight-related topics among children with Autism Spectrum Disorder in healthcare consultations. Autism Research, 11, 11, 1500-1510.
Donya Mosleh is a PhD student supervised by Dr. Barbara Gibson at the Critical Disability and Rehabilitation Sciences Unit, and the Rehabilitation Sciences Institute at the University of Toronto. Drawing on critical disability studies, childhood studies, sociology of health and illness, critical qualitative health research, rehabilitation studies and poststructural scholarship, Donya’s doctoral project examines how childhood disability is conceptualized within rehabilitation research, education, and practice. Her transdisciplinary research program will explore the social, cultural and institutional mechanisms that produce underlying assumptions regarding ‘normality’ and disability, and how these ideas shape rehabilitation and disabled children’s self-understandings.
Donya received her Hon. BA Sociology (2013) and MA Sociology (2014) at Wilfrid Laurier University. Currently, she is a Research Assistant for the CDARS ‘Enhancing Compassionate Care’ project, which aims to explore and enhance the human aspects of care for young people with muscular dystrophy and their families. Donya is also a Graduate Editorial Assistant for the Journal of Humanities in Rehabilitation. Donya can be contacted at email@example.com or firstname.lastname@example.org
Clarke J, and Mosleh D. The uses of biological sciences to justify the risk of children’s mental health and developmental disorders in North American News magazines: 1990-2012. In Crichton J, Candlin CN, Firkin, AS ed. Communicating Risk. London, UK: Palgrave MacMillan; 2016:267-287. https://doi.org/10.1057/9781137478788
Clarke J, Mosleh D. Risk and the Black American child: representations of children’s mental health issues in three popular African American magazines. Health, Risk and Society. 2015;17(1):1-14. DOI:10.1080/13698575.2014.992865
Clarke J, Mosleh D, Janketic N. Discourses about children’s mental health and developmental disorders in North American women’s magazines 1990-2012. Child and Family Social Work. 2014;21:391-400. DOI: 10.1111/cfs.12155.
Julia Gray is a SSHRC-funded Post Doctoral Fellow supervised by Dr. Barbara Gibson at the Critical Disability and Rehabilitation Studies Unit. Her program of research crosses the arts, humanities, social sciences and health sciences to improve wellbeing of disabled young people by elucidating social experiences and overturning cultural assumptions of disability/ability. This work is oriented to real world change through the overlapping interests of 1) drawing on arts-based methods and other critical qualitative approaches to explore the complexities of disability/ability, 2) exploring the ways people make art(s) as part of being in health settings and in the world, and 3) critically theorizing arts-based and qualitative methodologies. Originally trained as a playwright and theatre director, with a background in dance, she is the playwright/director of several research-informed theatre projects including After the Crash: a play about brain injury, Seeing the Forest (co-written with Dr. Gail Mitchell about patient safety culture in hospitals; script: https://ctr.utpjournals.press/doi/abs/10.3138/ctr.146.66?journalCode=ctr) and most recently Cracked: new light on dementia (www.crackedondementia.ca.) Julia holds a Bachelor of Fine Arts and Master of Arts from York University’s Department of Theatre and was a CIHR Strategic Training Doctoral Fellow in Health Care, Technology and Place from 2012 to 2014.
Gray, J., Kontos, P. (In Press) Working at the margins: Theatre, social science and radical political engagement. Research in Drama Education: The Journal of Applied Theatre and Performance. Special Issue on Theatre and Performance vs the “Crisis in the Humanities”: Creative Pedagogies, Neoliberal Realities.
Gray, J. (2019) Working within an aesthetic of relationality: Theoretical considerations of embodiment, imagination and foolishness as part of theatre making about dementia. Research in Drama Education: The Journal of Applied Theatre and Performance. Special Issue on Theatre, Dementia and Relationality, 24(1), 6-22. doi: 10.1080/13569783.2018.1535270
Gray, J. & Kontos, P. (2018) An aesthetic of relationality: embodiment, imagination and playing The Fool in research-informed theatre. Qualitative Inquiry. 24(7), 440-452. First published on-line November 9, 2017. doi: 10.1177/1077800417736331
Parsons, J. A., Gladstone, B. M., Gray, J. and Kontos, P. (2017) ‘Re-conceptualizing “impact” in art-based health research’, Journal ofApplied Arts & Health, 8(2), 155–73, doi: 10.1386/jaah.8.2.155_1
Denise DuBois is a PhD candidate supervised by Dr. Barbara Gibson in the Critical Disability and Rehabilitation Studies Unit, Bloorview Research Institute, and Dr. Emily Nalder, in the Community Integration and Participation Unit, Rehabilitation Sciences Institute (RSI). Denise receives funding from the Ontario Graduate Scholarship and March of Dimes Canada. Denise is currently a member of the Collaborative Program in Neuroscience. In 2016, Denise published “Interoception in Autism Spectrum Disorder: A Conceptual review” in the International Journal of Developmental Neuroscience.
Denise is an occupational therapist with expertise intervening with youth and adults with intellectual and developmental disabilities (IDD) and/or autism spectrum disorder (ASD) and their families. Denise’s current research builds on her five years of clinical experience at the Centre of Addiction and Mental Health (CAMH). Her doctoral thesis tackles the current residential crisis that faces Ontario’s developmental sector. Her research will focus on understanding the process of transition for adults with IDD/ASD and their families during residential relocation from the family home to another community location. Conceptually framed by Actor-Network Theory, Denise is particularly interested in describing how material aspects of the system interact to enable or disable sustainable, inclusive residential relocation. Denise will utilize critical qualitative methodologies, including media and policy analysis, the “go along method,” and exploration of the meaning of the home and neighbourhood to explore how human and material aspects of localized networks circulate and combine to enable or disable this transition process.
Denise graduated from her MSc. OT from the University of Toronto in 2010, receiving the Hospital for Sick Children’s Prize in Pediatrics and the Gordon Cressy Student Leadership Award. She received her Bachelors of Journalism (Honours) from Carleton University in 2008, where she specialized in health and science communication. She is currently a contributor and senior editor of rehabINK, RSI’s student-led online magazine. She is the research coordinator for the Voices of Youth Project funded by the Social Sciences and Humanities Research Council, which utilizes inclusive video methodologies to explore friendship and belonging for youth with IDD. Denise also volunteers with L’Arche Canada.
DuBois, D., Ameis, S. H., Lai, M. C., Casanova, M. F., & Desarkar, P. (2016). Interoception in Autism Spectrum Disorder: A systematic review.International Journal of Developmental Neuroscience, 52, 1-16.
DuBois, D., Giovanni, S., Chui, A., & Nalder, E. (2017). Capitalizing on lived experience to design a smartphone app for everyday life. Occupational Therapy Now, 19, 16-20.
DuBois, D. (2016). Managed Alcohol Programs in the community: What do they enable? rehabINK, 2. https://rehabinkmag.com/2016/10/11/managed-alcohol-programs-in-the-community-what-do-they-enable/
Margot McMain-Klein received her M.H.Sc. in Community Health & Epidemiology and B.Sc. in Occupational Therapy at the University of Toronto. She brings extensive experience from her work both clinically as a pediatric Occupational Therapist and in a research capacity. Margot is currently completing her Ph.D. in the Graduate Department of Rehabilitation Science at the University of Toronto.
Margot’s research interests are focused on the opportunities and constraints of new media technologies for children with disabilities to build relationships, construct identity and challenge disability discourse. Specifically, her doctoral research will employ the novel methodology of virtual ethnography to consider online video sharing sites through which children with disabilities can broadcast their own stories about the experience of living with disability via user-generated videos. A recipient of a CIHR Research Training Fellowship in Health Care, Technology and Place for 2014-2015 Margot is working under the primary HCTP mentorship of Dr. Barbara Gibson.
Jenny Setchell is a Research Fellow in Physiotherapy at the University of Queensland since January 2019. Prior to that she was a Post-Doc with Prof. Barbara Gibson at the Critical Disability and Rehabilitation Studies Unit and held a concurrent position at the School of Health and Rehabilitation Sciences of The University of Queensland. Her research interests include post-structuralist critical perspectives on healthcare broadly, and physiotherapy, disability and pain specifically. Her PhD in psychology at the University of Queensland focussed on weight stigma in physiotherapy. Dr Setchell has been awarded over 1.1M in funding for her work and has over 30 publications including a co-edited book. Dr Setchell also has 20 years of diverse clinical experience as a physiotherapist in Australia and internationally primarily in the musculoskeletal and sports sub-disciplines. She is a founding member, and past co-chair of the international Critical Physiotherapy Network and a member of the International Society for Critical Health Psychology. Dr Setchell is the recipient of prestigious NHMRC Fellowship (2019-2022) and the Margret Mittelheuser Fellowship for post-graduate study (2015). She has also been an acrobat and a human rights worker. Dr Setchell can be found on twitter at @JenSetchell. For more information about her work see: https://researchers.uq.edu.au/researcher/13932
Setchell J, Abrams T, McAdam LC, Gibson BE. Cheer* in healthcare practice: What it excludes and why it matters. Qualitative Health Research. In press.
Setchell J, Thille P, Abrams T, Mistry B, McAdam L, Gibson BE. Enhancing human aspects of care with young people with Muscular Dystrophy: Results from a participatory qualitative study with clinicians. Child: Care, Health and Development. 2018. 44(2):269-277.
Setchell J, Nicholls D, Gibson B. Objecting: Multiplicity and the practice of physiotherapy. Health. In Press.
Nicholls DA, Atkinson K, Bjorbækmo W, Gibson BE, Latchem J., Olesen, J., Ralls, J. Setchell J. Connectivity: An emerging concept for physiotherapy practice. Physiotherapy Theory and Practice. 2016; 32(3), 159-170.
Gail Teachman successfully defended her PhD dissertation in February 2016, under the supervision of Barbara Gibson and Colin Macarthur in the Rehabilitation Sciences Institute at University of Toronto. Her interdisciplinary research demonstrated the often hidden forms of exclusion experienced by non-speaking disabled children and the unintended moral harms that are perpetrated through well-intentioned "inclusive" interventions. In recognition of her leadership and research excellence, Gail was awarded a Vanier Canada Graduate Scholarship, a Faculty of Medicine Award for Research Innovation and a CIHR Fellowship. She was one of three University of Toronto 2016 graduates awarded a Governor General’s Gold Medal; the gold medal is one of the most prestigious awards a Canadian graduate student can receive. Prior to undertaking graduate studies, Dr. Teachman worked as an occupational therapist at Holland Bloorview Kids Rehabilitation Hospital and taught as a Clinical Associate with the Department of Occupational Science & Occupational Therapy at University of Toronto. Gail is an Assistant Professor with the School of Occupational Therapy at Western University in London, Ontario and can be reached at gteachma@uwo.
Yani Hamdani completed a PhD in Social and Behavioural Health Sciences at the Dalla Lana School of Public Health, University of Toronto in June 2016 (supervised by Rebecca Renwick and committee members Barbara Gibson and Cameron Norman). During her PhD training, she was a Fellow in the CIHR Strategic Training Program in Public Health Policy. Her PhD research examined how transition to adulthood is constituted as a problem in Ontario policies and the effects on young people with developmental disabilities and their parents. Her study showed that policies had both beneficial and unintended harmful consequences on the health, well-being and daily lives of young people and their families. Yani was awarded first place in the BRI Pursuit Award 2017 competition for her PhD research. Yani has presented her work at conferences in Canada, the U.S.A., Israel and Sweden. She is also an Occupational Therapist who worked at Holland Bloorview Kids Rehabilitation Hospital for many years before pursing her PhD. She is currently a Postdoctoral Fellow in the Profile Lab at BRI, and can be reached at email@example.com.
Dr. Coralee McLaren completed her undergraduate/graduate studies in Nursing at the University of Toronto, and worked as a Registered Nurse at the Hospital for Sick Children. Her award winning PhD dissertation focused on the relationship between children’s movement and the physical environment. During her Post-doctoral Fellowship hosted jointly by Bloorview Research Institute and CanChild Centre for Childhood Disability Research, Dr. McLaren and CDARS lead scientist Dr. Barbara Gibson co-wrote and secured a CIHR funded grant aimed at developing synergies between dance, neuroscience, architecture and education. Combining postmodern theory with artistic and empirical methods, this research seeks to gain critical insights into the relationship between movement and cognition in children with diverse abilities and optimize their physical and social interactions at school. This work draws on Dr. McLaren’s former career with the Toronto Dance Theatre and teaching experience at the associated School, York and Ryerson University Dance departments. Dr. McLaren is an Assistant Professor in the Daphne Cockwell School of Nursing at Ryerson University, and an Adjunct Scientist in the Bloorview Research Institute.
Kara Grace Hounsell began working with the CDARS lab as a Ward summer student in 2015. Her summer project focused on the ways in which personal and social perceptions of disability affect the activity preferences of children with cerebral palsy. Kara also completed an annotated bibliography, exploring the relationship between cognition and movement.
Following the Ward program, Kara was delighted to continue working with the CDARS lab, assisting with a study that explores how children with diverse dis/abilities move together. From September 2015-2016, Kara had the opportunity to observe children’s movements together, prepare ethnographic notes, and assist in data analysis.
Kara is currently studying medicine at the University of Toronto. She can be reached at firstname.lastname@example.org.
Stephanie Hanson began her journey at Holland Bloorview as a summer student with the Ward Family Summer Student Research Program under the supervision of Barbara Gibson in 2008, and continued to be supervised by Dr. Gibson until 2011. In 2009, she received the Ward Family Summer Student Research Presentation award for her presentation, Assessment of Children’s Capacity to Consent for Research: A descriptive qualitative pilot study of researchers’ practices and REBs’ expectations. Stephanie has also conducted research in university, hospital, and community-based settings on early learning, autism, mental health, and youth policy.
In 2011, Stephanie completed a Master of Arts in Child Study and Education at the University of Toronto, where she received the Robert Seth Kingsley Fellowship for excellence and leadership in special education. In 2016, she completed a post-graduate Certificate in International Development at the University of British Columbia. Stephanie has worked globally with children, youth, and adults from all walks of life, including persons with disabilities, Indigenous populations, and low-socioeconomic communities. In 2017, she was selected to be featured in the Alberta Council for Global Cooperation’s 6th Annual Top 30 under 30 magazine for her work in international and community development.
Currently, Stephanie works with the Vecova Centre for Disability Services and Research in Calgary, where she advocates for persons with disabilities through research, program development, and community engagement. Stephanie can be reached at email@example.com.
Thomas Abrams is a Killam postdoctoral fellow, Department of Sociology and Social Anthropology, Dalhousie University. His research focuses on the intersections of disability studies, sociological theory and social philosophy. He received his PhD (Sociology) from Carleton University, Ottawa, and was previously SSHRC postdoctoral fellow, Department of Social Justice Education, OISE / University of Toronto. He is the author of Heidegger and the Politics of Disablement (Palgrave 2016).
Yani Hamdani is a Fellow in the Profile Lab at BRI, supervised by Amy McPherson and funded by a Mitacs Postdoctoral Fellowship. She held a one-year Centre for Addiction and Mental Health (CAMH) Postdoctoral Fellowship supervised by Yona Lunsky in Adult Neurodevelopmental Services, and the Health Care Access Research and Developmental Disabilities (H-CARDD) program, and continues to make links to this research. Her interdisciplinary research integrates rehabilitation, disability studies, social and behavioural health sciences, policy change theories and critical social science perspectives to understand the effects of policies relevant to childhood disability.
Marla Munk (Family Advisor)
Jenny Setchell, PhD, PT, is an NHMRC Research Fellow in Physiotherapy at The University of Queensland, Australia. She was awarded her PhD (Psychology) in 2016. Dr Setchell’s research interests include using post structural and new materialist theory to critically rethink healthcare practice.
Gail Teachman is a CIHR postdoctoral fellow with the Centre for Research on Children and Families, McGill University, Montreal, Canada. Supervised by Franco Carnevale and Mary Ellen Macdonald, Gail’s interdisciplinary research is focused on childhood ethics and disability.
Gail is also part of the Centre for Research on Children and Families,
Patricia Thille, PhD, PT, is the Currie Post-Doctoral Fellow at the Wilson Centre, a joint centre of the University of Toronto and University Health Network. She was awarded her PhD (Sociology) in 2015, from the University of Calgary, with funding from CIHR and The Killam Trusts. She studies stigma and chronic disease management in health services and health professions education, using qualitative methodologies and social theory.