BLOOM combines real family stories with the best expert advice, plus the latest news and opinion on disability.

BLOOM combines real family stories with the best expert advice, plus the latest news and opinion on disability.
'I’ve lived the experience of being a client and working with clinicians. So far kids have had a very positive response to me.'
Over half have skipped meals to ensure their child can eat, one in three can’t keep their home warm, and 80 per cent can’t replace items like a fridge when they break.
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'They said they were trained to be hyper-positive, but sometimes the parent isn’t in that space. Often there is a big, gaping hole of despair that no one wants to look at.'
'Sometimes the best thing I can do is really be there with them and hold a difficult feeling with them. It might not be psychotherapy the way you learn about it in school, but it's very therapeutic.'
Families with disabled children were almost two times as likely to have difficulty paying medical bills and to delay or forgo care for their child due to cost.
'Needing care does not make you incapable of providing care. It doesn’t somehow make you a worse parent if you need help.'
'He can vocalize, cough, be suctioned, or stretch out on the floor without having to leave the venue space.'
Preschoolers with cerebral palsy only participated in the community a few times in the last four months, according to a new Holland Bloorview study.
Crisis in the Classroom was based on 541 parent responses to a survey about their child’s experience with restraints, isolation and exclusion in the 2022-23 school year.
Disclaimer
Content in BLOOM is not a substitute for professional medical advice. Always consult your doctor. Views expressed in posts and resources listed do not signify endorsement by Holland Bloorview Kids Rehabilitation Hospital. The BLOOM blog welcomes comments from readers on issues that affect parents of children with disabilities. All comments require approval to ensure they’re on-topic and respectful. We don’t post comments that attack people or organizations or use profanity or hate speech.
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Holland Bloorview Kids Rehabilitation Hospital
150 Kilgour Road
Toronto, Ontario
M4G 1R8
Canada