The Meaning of Health and Wellness in Adolescents and Youth with Spina Bifida


Summary

We want to explore what health and wellness means to young people with spina bifida and what health activities are important in their everyday lives. We want to hear about what sort of things you do or want to do to be healthy and feel good.


Call to action

Are you a young person with Spina Bifida between 10-24 years of age? Would you like to talk about what health and wellness means to you, and what health goals are important to you? Consider taking part in our study!


Who can participate

  • Young people with Spina Bifida between 10 – 24 years of age
  • Able to communicate in English and take part in a conversation
  • Have home internet connection
  • Have access to a camera (or cellphone with an inbuilt camera)

 


What's involved

During the study, you will be asked to use your own digital camera (or cellphone camera) and take 3-4 photos per week for 2 weeks that reflect or show what health and wellness means to you. Once you have taken all of your photographs, you will select 4-6 photographs to share with us during a 45 min-1 hour interview that will take place online using a free, secure meeting program. During the interview, we will ask you why you took each photo and what it says about your feelings of health and wellness.

The study will take about 2 weeks of your time, and you will not be required to travel to Holland Bloorview to participate.

Participants can also receive volunteer hours.


Deadline

When recruitment ends


Interested in participating?

If you are interested in participating in this study or have additional questions, please contact Celeste Lumia at 416-425-6220 ext. 3087 or clumia@hollandbloorview.ca with your interest. She will get back to your shortly. Contacting us does not mean that you have to participate in the study.

 

Learn more about this study