A survey study to help improve healthcare for Canadian kids
This survey study aims to understand how people involved in child development and rehabilitation connect with others to share and use knowledge, so that we can identify where strong connections and gaps exist across Canada, and take steps to strengthen them.
Call to action
Are you a parent or caregiver, researcher, healthcare provider, or person who supports moving knowledge into practice? Consider taking part in a national survey to help us build stronger networks to improve care for children who require specialized services to support their development.
Who can participate
We are looking for people who are involved in child development and rehabilitation in Canada:
- Adult family members (parents, grandparents, siblings) and caregivers (including kinship care or foster care) of children of any age who have an exceptionality (what the health community considers a disability, for example autism, cerebral palsy, ADHD).
- Researchers – people who design and conduct research as part of their formal role
- Healthcare providers – members of the healthcare team that provide assessment, consultation, or treatment for children with development or rehabilitation needs.
- Knowledge translation support people – people like knowledge brokers, knowledge keepers, Elders, librarians, nurse educators, research coordinators, parent advisors, and others whose formal role includes helping move health-related evidence into action. They may work or volunteer in health care, research, or community organizations.
This research study is funded by the Canadian Institutes of Health Research (CIHR).
Study participants will complete a web-based survey. The survey is available in English or French. The survey should take about 15 minutes to complete. You can save your answers and come back to finish the form later.
The survey has 2 aims:
- For those involved in research or healthcare or its improvement:
- To learn about the connections and gaps between people involved in knowledge translation in Canada, we will ask you to name up to 5 people (including researchers, healthcare providers, families, and knowledge translation support people) with whom you connect for knowledge translation. This will allow us to make a map that shows where strong connections and gaps in connections exist across Canada. Note: No names will be used in any reports of the findings. Names are needed to create the map of the connections between people who complete this survey, and then names will be deleted from the data set.
For family or caregivers without formal connections to research or health care improvement:
- To learn about the gaps and challenges you face in connecting to health care services and supports for the child for whom you care, and ways to make it easier to access knowledge about child development, the effectiveness of treatments, and supports that are available.
- To help us understand who took part in this survey from across Canada, we will ask you questions about you and your background.
The survey should take about 15 minutes to complete. You can save your answers and come back to finish the form later. Answers will be stored in a secure database called REDCap, hosted by the University of Manitoba.
This study is led by researchers at the Bloorview Research Institute, the University of Manitoba and Sunny Hill Health Centre at BC Children’s Hospital, and our team includes parent and family partners, Indigenous representatives, health care providers, knowledge translation support people, and researchers from across Canada.
Interested in participating
To take part in the survey, click here or type in www.redcap.link/connectingforcare
If you have additional questions, please contact Shauna Kingsnorth at firstname.lastname@example.org or call 416-425-6220 extension x3547.
Version 1 (20/01/2022) REB#481
Using Social Network Analysis to Understand Knowledge Translation in Child Development and Rehabilitation