Research to understand healthcare experiences of racialized youth with disabilities, their parents/caregivers, and the healthcare providers who serve them
We are trying to learn more about what it is like having a disability and being racialized. We want to hear about the unique experiences of racialized youth with disabilities, their parents/caregivers, and the healthcare providers that serve them, in getting or providing the healthcare and resources that they need.
Dr. Timothy Ross, EPIC Lab at Bloorview Research Institute
Dr. Fiona Moola, HEART Lab at Toronto Metropolitan University
Call to action
Are you between the ages of 13 – 24 years with a disability? Do you identify yourself as a racialized person? Are you a parent/caregiver or healthcare provider of a racialized child with a disability? Would you like to help contribute important changes to the healthcare system? We want to hear from you! Tell us about your healthcare experiences and any challenges you’ve faced in accessing or providing services and resources.
Who can participate
- Youth aged 13 – 24 years living with a disability in Ontario who identify themselves as racialized
- Parent/caregiver of racialized youth with a disability living in Ontario
- Healthcare provider (based in Ontario) serving racialized youth with disabilities
Centre for Leadership
If you decide to be in the study, you will be asked to do a short questionnaire and an interview that will take about 1 to 1.5 hours. In the interview, we will ask questions about how you experience healthcare, what services and resources you use, the difficulties you may have faced, and the emotions and feelings you had. If you need help speaking or understanding English, you can have a family member with you. During the interview, your voice will be recorded. Nobody else will be able to listen to your interview except for the research team.
You will also be asked to complete two art activities. You will be asked to take photos of your experiences and talk about them. You will also be asked to choose one more art activity that involves drawing pictures or portraits. You will be given art supplies like pencils and pastels to complete your drawings. Together, these art activities will take 2 to 3 hours to complete. Your artwork will then be put up on display at Holland Bloorview for others to see. Your name will not be on your art work.
Altogether, the study will take about 3 to 5 hours to complete.
Participants will receive a $75 gift card or 10 volunteer hours as a token of appreciation for their time.
Interested in participating
If you are interested in participating in this study or have additional questions, please contact Zehra Kamani at firstname.lastname@example.org or 416-420-1193.
Version 1 (23/02/2022) REB# 0468
Understanding Health Care Experiences of Racialized Youth with Disabilities, their Caregivers, and the Health Providers who Serve Them – Services, Access, Navigation, and Interpretation (The SANI Project)