Enhancing wellness of children with Cerebral Palsy (CP) and their families
Summary
Health and wellness are important aspects of the care provided to children and youth with CP at Holland Bloorview. Yet despite its importance incorporating a wellness approach into clinical practice remains a challenge. Barriers such as lack of resources and time, uncertainty regarding how to prioritize wellness aims, and how to address the diverse and individual needs of children and families, can interfere with wellness promotion. Our study will partner with clinicians, children and families to collaboratively identify and attend to the wellness needs and aspirations of children with CP and families , toward the delivery of holistic, family and child-centred care.
In this study “wellness” refers to the emotional, existential, social, and moral dimensions of illness experiences and care that co-exist with the physical/biological and technical dimensions. Our goal in the study is to partner with practitioners, young people and families to explore what wellness means to them, how wellness does/can align with clinical care, and to identify approaches, techniques and tools for collaboratively enhancing wellness.
Who can participate
Families and young people ages 2-18 with a diagnosis of Cerebral Palsy
Funding agency
This study is funded by the Academic Health Science Centre (AHSC) Alternate Funding Plan (AFP) Innovation Fund
What's involved
A research coordinator will observe one of your regularly scheduled clinic appointments. She will take notes of what she observes. No identifying information will be recorded in the observation notes. She will not interrupt the appointment and you can ask her to leave at any time. During the pandemic, observations will occur over the phone or Zoom.
There is one other option for the study:
Children and/or parents/caregivers can participate in a private interview to talk about your clinic experiences
Deadline
Interested in participating
If you are interested in participating in this study or have additional questions, please contact Bhavnita Mistry, research coordinator, at bmistry@hollandbloorview.ca or 416-425-6220 x3403 with your interest, and she will get back to you shortly. Contacting us does not obligate you or your child to participate in the study.
