Telling My Tale: Understanding the Life Story of Young People with Cystic Fibrosis and Muscular Dystrophy


Summary

Are you a young person with Cystic Fibrosis or Muscular Dystrophy between 14-29 years of age? Would you like to write and illustrate a storybook to tell us the story of your life? 

Researchers from the Holland Bloorview Kids Rehabilitation Hospital welcome your participation in this study. During the study, you will be asked to draw and write your story, as well as participate in an interview.

Researcher(s)

Fiona Moola

Who can participate

Young people with Cystic Fibrosis or Muscular Dystrophy between 14-29 years of age.

What's Involved

During the study, you will be asked to draw and write your story, as well as participate in an interview. The study will take about five weeks of your time.

Deadline

September 30, 2018

Interested in participating

Please contact us if you would like to share your story through writing and art at.

Contact info:

Dr. Fiona J. Moola

fmoola@hollandbloorview.ca

(204) 998-1039

Learn more about this study