Gathering Evidence to Support Families in Transition to Development/Rehabilitation Services for Children with Developmental Disorders: Understanding Parents' Experiences and Needs

Understanding Parents' Experiences and Needs


Summary

It is known that parents of children diagnosed with cerebral palsy (CP) may experience multiple stressful healthcare transitions within a short period of time. This study is being conducted to determine parents’ experiences and needs in transitioning their child with CP to developmental/ rehabilitation services, like those at Holland Bloorview Kids Rehabilitation Hospital. Our ultimate goal is to use what we learn to develop or improve programs to help provide parents with earlier and better support during times of transition.


Researcher(s)

Marilyn Ballantyne


Participate in this study

Do you have a child with cerebral palsy who recently started receiving care at Holland Bloorview? Consider participating in our study.


Who can participate

Parents (legal guardians) of children with cerebral palsy who were born preterm and have received rehabilitation/ developmental care at Holland Bloorview.


What's Involved

If you choose to participate, a member of our team will ask you to complete a questionnaire and take part in a 30-60 minute individual interview. The interview can be done in person, at Holland Bloorview, or over the phone, whatever is most convenient for you. We will also talk to you about your overall transition experience, the support and services available to you, and what your needs were during this time.

Participants will receive a $25 dollar gift card as a small token of appreciation for their time and the valuable information they provide.


Deadline

Recruitment of the study will be ongoing from August 2015- March 2016


Interested in participating

If you are interested in participating in this study or have additional questions, please contact Marilyn Ballantyne at (416) 425-6220 ext. 6041 or by email at mballantyne@hollandbloorview.ca, and we will get back to you shortly.

Contacting us does not obligate you to participate in this study

Learn more about this study