Addressing Primary Health Care Services Gaps for Transition-Aged Youth with Celebral Palsy

Addressing Primary Health Care Services Gaps for Transition-Aged Youth


Summary

We are completing a study at Holland Bloorview to understand barriers and enablers experienced by youths with Cerebral Palsy GMFCS IV-V (age 18- 35), their families/caregivers, pediatricians and family physicians when transitioning to age-appropriate primary health care, namely from a pediatrician to a family physician.  


Researcher(s)

Marilyn Ballantyne,Erin Brandon, Andrea Lauzon, Melanie Penner, & Erin McCarvill


Participate in this study

Who can participate

  • Four young adults (age 18-35) with GMFCS IV or V Cerebral Palsy who have transitioned to a family doctor from a pediatrician
  • Four parents/ care providers of adults with GMFCS IV or V Cerebral Palsy who have transitioned to a family doctor from a pediatrician
  • Four Pediatricians in the GTA who have supported transition of care or in the process of transitioning to adult services for youth with GMFCS IV or V Cerebral Palsy

 

What's Involved

A telephone interview will be completed with each participant for approximately 30- 60 minutes, over the phone, at a convenient time for them.  


Deadline

April 1, 2017


Interested in participating

Please contact Jesiqua Rapley at 416-452-6220 ext.6554 or jrapley@hollandbloorview.ca for additional questions or if you are interested in participating in the study. Contacting us does not obligate you or your child to participate in the study.


Funding Agency

Holland Bloorview Kids Rehabilitation Hospital's Centres for Leadership

Learn more about this study